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Impact of a patient and family participation education program on hospital nurses' attitudes and competencies

van Oort, Peter; Maaskant, Jolanda; Luttik, Marie Louise (Family Care); Eskes, Anne

OBJECTIVE: We designed a Patient and Family Participation Education Program (PFEP) with the aim of fostering a positive attitude and enhancing the competencies of hospital nurses required for effective patient and family participation in care. METHODS: In a Dutch university hospital, we conducted a before-after …

2024-12AlgemeenArtikel

Experiences and support needs of families raising adolescents with profound intellectual and multiple disabilities during the transition to adulthood

van den Dries-Luitwieler, Nicole (Participation And Health Of Persons With Intellectual And Visual Disabilities); Luijkx, Jorien; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Van der Putten, Annette; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

2024-10-30AlgemeenArtikel

Health care providers' perceptions of family participation in essential care in the intensive care unit: A qualitative study

Boukje Dijkstra (Phd); Lisette Schoonhoven; Karin Felten-Barentsz; Margriet van der Valk; Johannes G. van der Hoeven; Lilian Vloet (Lector)

Background Family participation in essential care may benefit patients and relatives. Aims To examine the needs, perceptions and preferences of health care providers about family participation in essential care in the adult intensive care unit. Study design A qualitative descriptive study using inductive …

2024-10-21GezondheidArtikel

The authors reply

Boukje Dijkstra; Lisette Schoonhoven; Johannes G. van der Hoeven; Lilian Vloet (Lector)

Online letter to the editor Rihimi-Bashar et al (1)

2024-06GezondheidArtikel

Experiences of Adult Siblings of Individuals With an Intellectual Disability and Pervasive Support Needs

Dorsman, Naomi (Participation And Health Of Persons With Intellectual And Visual Disabilities); Luijkx, Jorien; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Van der Putten, Annette; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Broers en zussen zijn belangrijk in het leven van mensen met een verstandelijke beperking en pervasieve ondersteuningsbehoeften. De ervaringen van volwassenen met de dingen die ze doen met of voor hun broers en zussen met pervasieve ondersteuningsbehoeften blijven onderbelicht. Deze studie onderzocht …

2024-04-15AlgemeenArtikel

Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

Lahaije, S.T.A.; Luijkx, Jorien; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Van der Putten, Annette

Personen met ernstige verstandelijke en meervoudige beperkingen (PIMD) hebben veel ondersteuningsbehoeften, die door hun familie moeten worden ingevuld. Door veerkrachtig te zijn, kunnen gezinnen zich positief aanpassen aan deze uitdaging en een positieve FQOL behouden. Daarom wilden we begrijpen hoe …

2024-03-28AlgemeenArtikel

Effect of a Standardized Family Participation Program in the ICU: A Multicenter Stepped-Wedge Cluster Randomized Controlled Trial*

Boukje Dijkstra; Paul Rood; Steven Teerenstra; Anne M.F. Rutten; Christa Leerentveld; Dominique C. Burgers-Bonthuis; Barbara Festen-Spanjer; Toine Klarenbeek; Mark van den Boogaard; E. Ewalds; Lisette Schoonhoven; Johannes G. van der Hoeven; Lilian Vloet (Lector)

To determine the effect of a standardized program for family participation in essential care activities in the ICU on symptoms of anxiety, depression, posttraumatic stress and satisfaction among relatives, and perceptions and experiences of ICU healthcare providers (HCPs). A standardized program to facilitate …

2024-03GezondheidArtikel

Involvement of family members of older patients with cancer in triadic decision-making processes during medical consultations on an outpatient ward

Dijkman, Bea L (Family Care); Luttik, Marie Louise (Family Care); van der Wal-Huisman, Hanneke; Paans, Wolter (Advance Care Planning); van Leeuwen, Barbara L

INTRODUCTION: There is a growing interest in the involvement of family members of older patients with cancer in decision-making processes. The aim of this study is to identify how and to what extent family members, together with patients and physicians, are involved in triadic decision-making processes …

2024-01-12AlgemeenArtikel

Collaborative working in speech and language therapy for children with DLD—What are parents’ needs?

Inge Klatte (Onderzoeker); Manon Bloemen (Onderzoeker); Annemieke de Groot (Onderzoeker); Tina Mantel (Onderzoeker); Marjolijn Ketelaar (Onderzoeker); Ellen Gerrits (Lector)

Background: Collaborative practice between therapists and parents is a key element of family-centred care and is essential if we want to address family priorities and needs in interventions. However, collaborative practice is challenging for speech and language therapists (SLTs) and parents. To facilitate …

2024GezondheidArtikel

Redressing power imbalances in care for people with intellectual disabilities

Berit Godfroij (Onderzoeker); Sascha van Gijzel (Onderzoeker); Henk Roelfsema (Onderzoeker); Jean-Pierre Wilken (Lector); Anita Cremers (Lector); Rosa de Vries (Onderzoeker)

In the Netherlands, client and family participation in care for people with intellectual disabilities has been in vogue for a long time, and increasingly receives attention (KPMG and Vilans 2017). However, the perspective and experiential knowledge of service users and relatives is often still insuBiciently …

2024GezondheidConferentiebijdrage

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