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Parenting a child with Marfan syndrome

Warnink-Kavelaars, Jessica; van Oers, Hedy A.; Haverman, Lotte; Buizer, Annemieke I.; Alsem, Mattijs W.; Engelbert, Raoul H. H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Menke, Leonie A.

Marfan syndrome (MFS) is a multisystemic, autosomal dominant connective tissue disorder that occurs de novo in 25%. In many families, parent and child(ren) are affected, which may increase distress in parents. To assess distress, 42 mothers (29% MFS) and 25 fathers (60% MFS) of 43 affected children, …

2021-01AlgemeenArtikelOpen Access

The NUPHAC-EU Framework for Nurses’ Role in Interprofessional Pharmaceutical Care

Elyne De Baetselier (Onderzoeker); Bart Van Rompaey (Onderzoeker); Nienke Dijkstra (Onderzoeker); Carolien Sino (Onderzoeker); Kevin Akerman (Onderzoeker); Luis M da Cunha Batalha (Onderzoeker); María I D Fernández (Onderzoeker); Izabela Filov (Onderzoeker); Vigdis Abrahamsen Grøndahl (Onderzoeker); Jana Heczkova (Onderzoeker); Ann Karin Helgesen (Onderzoeker); Sarah Keeley (Onderzoeker); Petros Kolovos (Onderzoeker); Gero Langer (Onderzoeker); Sabina Ličen (Onderzoeker); Manuel Lillo-Crespo (Onderzoeker); Alba Malara (Onderzoeker); Hana Padyšáková (Onderzoeker); Mirko Prosen (Onderzoeker); Dorina Pusztai (Onderzoeker); Bence Raposa (Onderzoeker); Jorge Riquelme-Galindo (Onderzoeker); Jana Rottková (Onderzoeker); Francesco Talarico (Onderzoeker); Styliani Tziaferi (Onderzoeker); Tinne Dilles (Onderzoeker)

Clear role descriptions promote the quality of interprofessional collaboration. Currently, it is unclear to what extent healthcare professionals consider pharmaceutical care (PC) activities to be nurses’ responsibility in order to obtain best care quality. This study aimed to create and evaluate a framework …

2021GezondheidArtikelOpen Access

Perspectives of nurses' role in interprofessional pharmaceutical care across 14 European countries

Elyne De Baetselier (Onderzoeker); Tinne Dilles (Onderzoeker); Luis M Batalha (Onderzoeker); Maria I Fernandes (Onderzoeker); Nienke E Dijkstra (Onderzoeker); Izabela Filov (Onderzoeker); Juliane Friedrichs (Onderzoeker); Vigdis A Grøndahl (Onderzoeker); Jana Heczkova (Onderzoeker); Ann Karin Helgesen (Onderzoeker); Sue Jordan (Onderzoeker); Sarah Keeley (Onderzoeker); Thomas Klatt (Onderzoeker); Petros Kolovos (Onderzoeker); Veronika Kolirova (Onderzoeker); Sabina Ličen (Onderzoeker); Manuel Lillo-Crespo (Onderzoeker); Alba Malara (Onderzoeker); Hana Padysakova (Onderzoeker); Mirko Prosen (Onderzoeker); Dorina Pusztai (Onderzoeker); Jorge Riquelme-Galindo (Onderzoeker); Jana Rottkova (Onderzoeker); Carolien G Sino (Onderzoeker); Francesco Talarico (Onderzoeker); Styliani Tziaferi (Onderzoeker); Bart Van Rompaey (Onderzoeker)

Objectives: To understand healthcare professionals' experiences and perceptions of nurses' potential or ideal roles in pharmaceutical care (PC). Design: Qualitative study conducted through semi-structured in-depth interviews. Setting: Between December 2018 and October 2019, interviews were conducted …

2021GezondheidArtikelOpen Access

Asynchronous mHealth interventions in rheumatoid arthritis

Seppen, Bart F; den Boer, Pim; Wiegel, Jimmy; ter Wee, Marieke M; van der Leeden, Marike; de Vries, Ralph; van der Esch, Martin (Urban Vitality); Bos, Wouter H

BACKGROUND: Mobile devices such as smartphones and tablets have surged in popularity in recent years, generating numerous possibilities for their use in health care as mobile health (mHealth) tools. One advantage of mHealth is that it can be provided asynchronously, signifying that health care providers …

2020-11AlgemeenAndersoortig materiaalOpen Access

Evaluation of a Blended Physical Activity Intervention for Older Adults: Mixed Methods Study

Mehra, Sumit; van den Helder, Jantine (Lectoraat Voeding En Beweging); Visser, Bart (Lectoraat Oefentherapie); Engelbert, Raoul H H (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Weijs, Peter J M (Lectoraat Voeding En Beweging); Kröse, Ben J A

Background: Physical activity can prolong the ability of older adults to live independently. Home-based exercises can help achieve the recommended physical activity levels. A blended intervention was developed to support older adults in performing home-based exercises. A tablet and a personal coach were …

2020-07AlgemeenArtikelOpen Access

Referral decisions and its predictors related to orthopaedic care

Esther van den Bogaart; Marieke Spreeuwenberg (Lid Lectoraat); Mariëlle Kroese; Mark van den Bogaart; Tim Boymans; Dirk Ruwaard

Due to the ageing population, the prevalence of musculoskeletal disorders will continue to rise, as well as healthcare expenditure. To overcome these increasing expenditures, integration of orthopaedic care should be stimulated. The Primary Care Plus (PC+) intervention aimed to achieve this by facilitating …

2020-01-23GezondheidArtikelOpen Access

Implementing experience sampling technology for functional analysis in family medicine

Naomie Daniëls; Laura Hochstenbach (Lid Lectoraat); Marloes Amantia van Bokhoven; Sandra Beurskens (Lector); Philippe Delespaul

Background: A paradigm shift in health care from illness to wellbeing requires new assessment technologies and intervention strategies. Self-monitoring tools based on the Experience Sampling Method (ESM) might provide a solution. They enable patients to monitor both vulnerability and resilience in daily …

2019-12-11GezondheidArtikelOpen Access

A Bayesian Network Analysis of the Diagnostic Process and Its Accuracy to Determine How Clinicians Estimate Cardiac Function in Critically Ill Patients

SICS Study Group

BACKGROUND: Hemodynamic assessment of critically ill patients is a challenging endeavor, and advanced monitoring techniques are often required to guide treatment choices. Given the technical complexity and occasional unavailability of these techniques, estimation of cardiac function based on clinical …

2019-10-30AlgemeenArtikelClosed Access

In gesprek gaan over ROM in de transculturele psychiatrie

Elles Meier (Student); Romy Vlegels (Student); J.G. Rothfusz (Begeleider)

Deze verantwoording is een afstudeeronderzoek voor de opleiding Toegepaste Psychologie aan de Hanzehogeschool Groningen, in opdracht van Centrum voor Transculturele Psychiatrie (CTP) Veldzicht. CTP Veldzicht is in september 2018 begonnen met Routine Outcome Monitoring (ROM). In de werkwijze van ROM staat …

2019-06-03Mens & MaatschappijBachelorOpen Access

Identifying social participation subgroups of individuals with severe mental illnesses

Sarita A. Sanches; Wilma Swildens (Lector); Jooske van Busschbach; Jaap van Weeghel

PURPOSE: To investigate factors that influence participation in and needs for work and other daytime activities among individuals with severe mental illnesses (SMI). METHODS: A latent class analysis using routine outcome monitoring data from 1069 patients was conducted to investigate whether subgroups …

2019Mens & MaatschappijArtikelOpen Access

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