Samenvatting

The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized as having an influence on the relationship between professionals and parents. However, there is a lack of in-depth understanding of how chronic sorrow shapes dynamics in the parent–professional relationship. Through participatory action research, we explored the perspectives on chronic sorrow that parents and professionals brought into communication, ultimately leading to mutual understanding.