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Parents' information needs during the first year at home with their very premature born child; a qualitative study

Flierman, Monique (Faculteit Gezondheid); Bossen, Daniel (Lectoraat Oefentherapie); de Boer, Rosa; Vriend, Eline; van Nes, Fenna; van Kaam, Anton; Engelbert, Raoul (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Jeukens-Visser, Martine

Objective To obtain insights into parents' information needs during the first year at home with their very preterm (VP) born infant. Methods We conducted semi-structured interviews with parents of VP infants participating in a post-discharge responsive parenting intervention (TOP program). Online interviews …

2024-12AlgemeenArtikel

Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders

de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Warnink-Kavelaars, Jessica; van Rossum, Marion A.; Bosman, Diederik; Menke, Leonie A.; Malfait, Fransiska; de Boer, Rosa; Oosterlaan, Jaap; Engelbert, Raoul H.H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies

The aim of the present study was to investigate the nature and prevalence of nonspecific somatic symptoms, pain and catastrophizing in children with Heritable Connective Tissue Disorders (HCTD), and to determine their association with disability. This observational, multicenter study included 127 children, …

2023-07AlgemeenArtikel

Physical Functioning After Admission to the PICU: A Scoping Review

Bossen, Daniël (Centre Of Expertise Urban Vitality); de Boer, Rosa M.; Knoester, Hendrika; Maaskant, Jolanda M.; van der Schaaf, Marike (Faculteit Gezondheid); Alsem, Mattijs W.; Gemke, Reinoud J. B. J.; van Woensel, Job B. M.; Oosterlaan, Jaap; Engelbert, Raoul H. H. (Centre Of Expertise Urban Vitality)

Objectives: To conduct a scoping review to 1) describe findings and determinants of physical functioning in children during and/or after PICU stay, 2) identify which domains of physical functioning are measured, 3) and synthesize the clinical and research knowledge gaps. Data Sources: A systematic search …

2021-06AlgemeenAndersoortig materiaal

Ontwerprichtlijnen voor het eTop systeem

van der Bie, Joey (J.H.F.); Bondietti, Sergio; Flierman, Monique; de Boer, Rosa; Bossen, Daniel (Lectoraat Oefentherapie)

Dit document geeft middels ontwerprichtlijnen antwoord op de vraag; “Op wat voor manier kunnen ouders van het ToP programma digitaal ondersteund worden door zorgprofessionals om (thuis) zelfstandig (betrouwbare) informatie te vinden die helpt bij het begeleiden van de ontwikkeling van hun prematuur geboren …

2020-11-24AlgemeenRapport

Physical functioning in pediatric intensive care survivors and its associated determinants: A scoping review protocol

de Boer, RM; Bossen, D (Lectoraat Oefentherapie); Maaskant, JM; van der Schaaf, M; Alsem, MW; Knoester, H; Gemke, RJBJ; van Woensel, JBM; Oosterlaan, J; Engelbert, RHH; de Boer, Rosa Maria; Bossen, Daniël (Lectoraat Oefentherapie)

Objective: The objective of this scoping review is threefold: (1) to describe outcomes of and determinants for physical functioning in pediatric intensive care unit (PICU) survivors evaluated during and/or after their PICU stay, (2) to provide an overview how physical functioning and its associated determinants …

2019-11-19AlgemeenAndersoortig materiaal

Is motor performance in 5.5-year-old children associated with the presence of generalized joint hypermobility?

de Boer, Rosa M.; van Vlimmeren, Leo A.; Scheper, Mark C.; Nijhuis-van der Sanden, Maria W.G.; Engelbert, Raoul H.H.

OBJECTIVE: To determine the prevalence of generalized joint hypermobility (GJH) in Dutch children aged 5.5 years, and to examine the association between GJH and motor performance and development over time. STUDY DESIGN: A prospective cohort of 249 children was recruited. GJH was assessed with the Beighton …

2015-07-17AlgemeenArtikel

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