In het veranderingsproces naar samen beslissen en passende zorg is het perspectief vanuit de patiënt, en de naasten, fundamenteel. Stichting FCIC (Family and patient Centered Intensive Care), waaronder patiëntenorganisatie IC-Connect, heeft in nauwe samenwerking met het Erasmus MC, HAN University of …

BACKGROUND: Healthcare professionals in the hospital setting frequently assume primary caregiving responsibilities, which often leads family members to perceive this as standard practice during hospitalization. This dynamic may create a gap between actual and desired levels of family involvement. The …

Die qualitative Studie befasst sich damit, wie Kinder und Jugendliche zwischen 10 und 17 Jahren Partizipation in Betätigungen beschreiben. Hierzu wird das family of participation-related construct (fPRC) als Modell zur Erklärung von Partizipation genutzt.

Background: Medical consultations with older patients often include triadic conversations and decision-making processes involving physicians, patients, and family members. The presence of family members may change the communication dynamics and therefore increase the complexity of the consultation and …

De IC-HerstelWijzer en IC-NaastenCoach zijn nieuwe, digitale platforms die Intensive Care-patiënten en hun familie tijdens en na opname ondersteunen. Stichting FCIC (Family and Patient Centered Intensive Care) en patiëntenorganisatie IC-Connect zijn de platforms gestart in samenwerking met Erasmus MC. …

OBJECTIVE: We designed a Patient and Family Participation Education Program (PFEP) with the aim of fostering a positive attitude and enhancing the competencies of hospital nurses required for effective patient and family participation in care. METHODS: In a Dutch university hospital, we conducted a before-after …

Objective Hospital-to-home (H2H) transitions challenge families of children with medical complexity (CMC) and healthcare professionals (HCP). This study aimed to gain deeper insights into the H2H transition process and to work towards eHealth interventions for its improvement, by applying an iterative …

Background In geriatric oncology, family members frequently accompany older patients with cancer to medical consultations and participate in shared decision-making (SDM) processes. While family involvement can enhance decision-making, it also presents challenges for healthcare professionals. Additionally, …

Background and aim Addiction problems also affect the lives of family members. This study aims to examine: (1) young adult family members’ experiences with informal and professional support in coping with the impact of relatives’ addiction problems and (2) how these experiences evolve over time. Method A …