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Experiences and support needs of families raising adolescents with profound intellectual and multiple disabilities during the transition to adulthood

van den Dries-Luitwieler, Nicole (Participation And Health Of Persons With Intellectual And Visual Disabilities); Luijkx, Jorien; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Van der Putten, Annette; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

2024-10-30AlgemeenArtikel

Meaningful contributions of rehabilitation for people with persistent pain; a reflexive thematic analysis

Beetsma, Anneke J (Healthy Ageing, Allied Health Care And Nursing); Paap, Davy; Pool, Grieteke; Reezigt, Roland R; de Ruiter, Eugenie; Hobbelen, Hans S M (Healthy Ageing, Allied Health Care And Nursing); Reneman, Michiel F

PURPOSE: This study aims to explore the meaningful contributions of rehabilitation for participants living with persistent pain. MATERIALS AND METHODS: A phenomenological methodology was used. Thirteen purposefully selected participants, who self-identified as substantially improved from persistent pain …

2024-07-19AlgemeenArtikel

The design elements of outpatient geriatric rehabilitation from patient, healthcare professional, and organizational perspective

Astrid Preitschopf; Marije Holstege (Lector); Andrea Ligthart; Bianca Buurman; Margriet Pol

Purpose: To gain a rich understanding of the experiences and opinions of patients, healthcare professionals, and policymakers regarding the design of OGR with structure, process, environment, and outcome components. Methods: Qualitative research based on the constructive grounded theory approach is …

2024-07-11GezondheidArtikel

LEEV! Gecombineerde, gepersonaliseerde en integrale leefstijlondersteuning voor mensen met een verstandelijke beperking

Overwijk, Annelies (Healthy Ageing, Allied Health Care And Nursing); Lamberts, Kirsten (Healthy Ageing, Allied Health Care And Nursing); Schoufour, Josje; Oppewal, A.; Steenbergen, Rianne (Participatie En Gezondheid Van Mensen Met Een Verstandelijke En Visuele Beperking); Waninge, Aly (Participatie En Gezondheid Van Mensen Met Een Verstandelijke En Visuele Beperking)

2024-07-10AlgemeenAndersoortig materiaal

Experiences of Adult Siblings of Individuals With an Intellectual Disability and Pervasive Support Needs

Dorsman, Naomi (Participation And Health Of Persons With Intellectual And Visual Disabilities); Luijkx, Jorien; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Van der Putten, Annette; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Broers en zussen zijn belangrijk in het leven van mensen met een verstandelijke beperking en pervasieve ondersteuningsbehoeften. De ervaringen van volwassenen met de dingen die ze doen met of voor hun broers en zussen met pervasieve ondersteuningsbehoeften blijven onderbelicht. Deze studie onderzocht …

2024-04-15AlgemeenArtikel

Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities

Lahaije, S.T.A.; Luijkx, Jorien; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Van der Putten, Annette

Personen met ernstige verstandelijke en meervoudige beperkingen (PIMD) hebben veel ondersteuningsbehoeften, die door hun familie moeten worden ingevuld. Door veerkrachtig te zijn, kunnen gezinnen zich positief aanpassen aan deze uitdaging en een positieve FQOL behouden. Daarom wilden we begrijpen hoe …

2024-03-28AlgemeenArtikel

Illness perceptions in people with chronic and disabling non-specific neck pain seeking primary healthcare: a qualitative study

M. Kragting; A.L. Pool-Goudzwaard; M.W. Coppieters; P.B. O'Sullivan; L.P. Voogt

Background Illness perceptions can affect the way people with musculoskeletal pain emotionally and behaviorally cope with their health condition. Understanding patients illness perceptions may help facilitate patient-centered care. The purpose of this study was to explore illness perceptions and the …

2024-02-27GezondheidArtikel

The Prediction of Healthcare Utilization by Frailty and Disability among Dutch Community-Dwelling People Aged 75 Years or Older

Tjeerd van der Ploeg (Lid Lectoraat); Robbert Gobbens (Lector)

ABSTRACT: Background Population aging is occurring worldwide. As a result, frailty and disability are in the full interest of practice, policy, and science. An increase in healthcare utilization is an adverse outcome of frailty and disability. Objective The aim of the present study was the prediction …

2024-02-06GezondheidArtikel

Identification of subgroups of patients with oesophageal cancer based on exercise intensity during prehabilitation

Elja Reijneveld (Onderzoeker); Mitchel Griekspoor (Onderzoeker); Jaap Dronkers (Onderzoeker); Ad Kerst (Onderzoeker); Jelle Ruurda (Onderzoeker); Cindy Veenhof (Lector)

Purpose: To identify subgroups of patients with oesophageal cancer based on exercise intensity during prehabilitation, and to investigate whether training outcomes varied between subgroups. Materials and methods: Data from a multicentre cohort study were used, involving participants following prehabilitation …

2024GezondheidArtikel

Redressing power imbalances in care for people with intellectual disabilities

Berit Godfroij (Onderzoeker); Sascha van Gijzel (Onderzoeker); Henk Roelfsema (Onderzoeker); Jean-Pierre Wilken (Lector); Anita Cremers (Lector); Rosa de Vries (Onderzoeker)

In the Netherlands, client and family participation in care for people with intellectual disabilities has been in vogue for a long time, and increasingly receives attention (KPMG and Vilans 2017). However, the perspective and experiential knowledge of service users and relatives is often still insuBiciently …

2024GezondheidConferentiebijdrage

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