Frailty is a common but complex phenomenon that is approached from theoretical and professional perspectives but rarely from the perspectives of older people and their essential stakeholders. Different or opposing perspectives on frailty at personal, organisational, and community levels can negatively …

Background Early onset dementia (EOD) presents unique challenges, particularly in managing anxiety, stress, and sleep disturbances. Within the Young-D project, the project partners developed workshop programme for people with EOD, with the aim to address these issues. The Young-D programme was piloted …

In the final stage of people’s life, family caregivers spend an average of 26 hours a week providing informal care at home. While this care can be rewarding, it can also lead to overburdening and increase the need for support. Despite the efforts of healthcare providers, many family caregivers feel that …

In recent years, Dutch authorities have attempted to shift from formal to informal care responsibilities to meet an increasing demand for care. There is a growing expectation that social and healthcare professionals will actively involve, support, and collaborate with partners, family members, and others …

Aims: This study explored what informal caregivers of ethnic minority (EM) persons with dementia in the Netherlands perceive as culturally accessible health care and nurses' perceptions of how cultural competence can be improved to facilitate access to health care for EM persons with dementia and their …

Older care recipients living at home increasingly rely on support from informal caregivers. As informal caregivers often combine these caregiving tasks with other tasks, such as paid work, they are at risk of becoming overloaded. To decrease informal caregiver burden, diferent forms of support are available …

Aim: Informal caregivers share common experiences in providing care to someone with health and/or social needs, but at the same time their experiences differ across diverse backgrounds such as gender, age, culture, as these aspects of diversity co-shape these experiences. This scoping review aims to …

BACKGROUND: Family engagement in care for adult inpatients may improve shared decision making in the hospital and the competence and preparedness of informal caregivers to take over the care at home. An important strategy to involve family members in hospital care processes is to include them in (ward) …

The overall goal of the Odense house project is to diminish the burden of informal carers of people living with dementia (PLWD) through professional and structural support of the informal carers and the use of tailor-made technological solutions. The project aims to strengthen the resilience and perseverance …