To provide insight into people’s experiences in dealing with the consequences of head and neck cancer (HNC) in daily life and their needs for self-management support.

Purpose Empowerment in patients can lead to a higher participation in care and self-management skills. However, there are a limited number of high-quality instruments to assess empowerment and its various dimensions in young persons. The aim was to develop and assess the psychometric properties of the …

To support young people in their transition to adulthood and transfer to adult care, a number of interventions have been developed. One particularly important intervention is the transition clinic (TC), where paediatric and adult providers collaborate. TCs are often advocated as best practices in …

In Nederland groeien ruim 500.000 kinderen en jongeren op met een chronische aandoening of fysieke beperking. Het groeiende aantal jongeren met chronische aandoeningen stelt hoge eisen aan het zorgstelsel: er dreigt een discrepantie tussen vraag en aanbod van zorg te ontstaan. Juist de periode van de …

End-stage kidney disease (ESKD) may interfere with children’s developmental task of acquiringautonomy and participation. The Skills for Growing Up tool encourages normal development towards independence andautonomy during paediatric rehabilitation. This study aimed to adapt this self-management tool …

PURPOSE: To gain insight into the development of young persons with chronic conditions towards independence by comparing their lived experiences to those of their parents. METHODS: Semi-structured interviews were held with 16 young persons (7 males, 9 females; 15-22 years) and one of their parents …