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Zocht je misschien: parents, patient?

‘It is up to me because I gave him this life’

Edith Raap (Onderzoeker); Katie Lee Weille (Onderzoeker); Christine Dedding (Onderzoeker)

Objective: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child’s disability. There is a significant lack of research on parents’ lived experiences of chronic sorrow, which limits our ability to understand …

2024Mens & MaatschappijArtikel

Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders

de Koning, Lisanne E. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Warnink-Kavelaars, Jessica; van Rossum, Marion A.; Bosman, Diederik; Menke, Leonie A.; Malfait, Fransiska; de Boer, Rosa; Oosterlaan, Jaap; Engelbert, Raoul H.H. (Lectoraat Fysiotherapie - Transitie Van Zorg Bij Complexe Patiënten); Rombaut, Lies

The aim of the present study was to investigate the nature and prevalence of nonspecific somatic symptoms, pain and catastrophizing in children with Heritable Connective Tissue Disorders (HCTD), and to determine their association with disability. This observational, multicenter study included 127 children, …

2023-07AlgemeenArtikel

Promoting an Early Childhood Education and Care teacher-parent partnership regarding healthy behaviours in young children - a process evaluation

Toussaint, N. (Centre Of Expertise Urban Vitality); Streppel, M.T. (Lectoraat Voeding En Beweging); Mul, S. (Lectoraat Voeding En Beweging); Gündüz, M. (Lectoraat Voeding En Beweging); van Verseveld, M.D.A.; Janssen, M. (Lectoraat Bewegen In En Om School); Weijs, P.J.M. (Lectoraat Voeding En Beweging); Fukkink, R.G. (Kenniscentrum Onderwijs En Opvoeding)

2023-06-15AlgemeenConferentiebijdrage

Lung Ultrasound to Determine the Effect of Lower vs. Higher PEEP on Lung Aeration in Patients without ARDS—A Substudy of a Randomized Clinical Trial

Zimatore, Claudio; Algera, Anna Geke; Botta, Michela; Pierrakos, Charalampos; Serpa Neto, Ary; Grasso, Salvatore; Schultz, Marcus J.; Pisani, Luigi; Paulus, Frederique (Lectoraat Critical Care)

Background: Ventilation with lower positive end–expiratory pressure (PEEP) may cause loss of lung aeration in critically ill invasively ventilated patients. This study investigated whether a systematic lung ultrasound (LUS) scoring system can detect such changes in lung aeration in a study comparing …

2023-06AlgemeenArtikel

Samenwerken met ouders

Kassenberg, Annelies; Akkermans, Marlot

2023-05-11Mens & MaatschappijConferentiebijdrage

Een Onderzoek naar Ouder-Kindspeltherapie in Nederland en de Child Parent Relationship Therapy

Kim Hobbelen (Student); Jan Willem van Nus (Begeleider)

In dit onderzoek zijn verschillen en overeenkomsten tussen ouder-kindspeltherapie in Nederland eb Child Parent Relationship Therapy (CPRT) in kaart gebracht. De ouder-kindspeltherapie in Nederland is nog niet getoetst op effectiviteit. De CPRT is een effectieve interventie in Amerika en er is onderzocht …

2023-05Mens & MaatschappijMaster

Family Surveillance: Understanding Parental Monitoring, Reciprocal Practices, and Digital Resilience

Anouk Mols (Onderzoeker); Jorge Pereira Campos; Jason Pridmore

Parents who grew up without digital monitoring have a plethora of parental monitoring opportunities at their disposal. While they can engage in surveillance practices to safeguard their children, they also have to balance freedom against control. This research is based on in-depth interviews with eleven …

2023ICT & MediaArtikel

Perceive, Recall, Plan and Perform (PRPP)-Assessment Based on Parent-Provided Videos of Children with Mitochondrial Disorder: Action Design Research on Implementation Challenges.

Marieke Lindenschot; I.J.M. de Groot; M.W.G. Nijhuis -van der Sanden; Esther Steultjens; M.J.L. Graff; S. Koene

AIMS: Performing the Perceive, Recall, Plan and Perform (PRPP)-Assessment, using video material of everyday life, seems sensible to lower the patient burden, enhance ecological validity, and provide care at a distance. However, receipt of adequate video material is not self-evident and assessing videos …

2023AlgemeenArtikel

Why do new parents stop practising sport? A retrospective study towards the determinants of dropping out after becoming a parent.

Jasper van Houten

2023AlgemeenConferentiebijdrage

Effect and process evaluation of a preschool-based intervention to promote an early childhood education and care teacher-parent partnership about healthy behaviours in children: Study protocol for the cluster randomised controlled trial CO-HEALTHY

Toussaint, Nicole (Centre Of Expertise Urban Vitality); Streppel, Martinette T. (Lectoraat Voeding En Beweging); Mul, Sandra (Lectoraat Voeding En Beweging); Gündüz, Meryem (Lectoraat Voeding En Beweging); van Verseveld, Marloes D.A.; Janssen, Mirka (Lectoraat Bewegen In En Om School); Weijs, Peter J. M. (Lectoraat Voeding En Beweging); Fukkink, Ruben G. (Kenniscentrum Onderwijs En Opvoeding)

Background Early Childhood Education and Care (ECEC) teachers at urban preschools are potential key figures to promote healthy behaviours in disadvantaged young children and to engage parents in lifestyle-related topics. An ECEC teacher-parent partnership regarding healthy behaviours may support parents …

2023AlgemeenArtikel

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