The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized …

Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …

The importance of hearing parents of deaf and hard-of-hearing (DHH) children learning sign language is well documented. However, parents face many challenges in this learning process. This study investigates the experiences of Dutch hearing parents learning Dutch Sign Language (NGT) or Sign-supported …

In this paper, we draw on our subjective experiences as Early Career Academics (ECAs) at a Dutch University to demonstrate our complex relationship between academic life and parenthood. Building on the sensemaking literature, we employ a collective autoethnography to unveil six distinct new parent scripts …

Background: Collaboration between Speech and Language Therapists (SLTs) and parents is considered best practice for children with developmental disorders. However, such collaborative approach is not yet implemented in therapy for children with developmental language disorders (DLD) in the Netherlands. …

Research on migrant youth makes two longstanding assumptions: that they are immobile following their own or their parents’ migration and that their resource environments are confined to their country of residence. Recent investigations of transnational youth mobility question both assumptions, showing …

Background Goal setting is an essential step in the clinical reasoning process of speech and language therapists (SLTs) who provide care for children, adolescents and adults with communication disorders. In the light of person-centred care, shared or collaborative goal setting between the SLT and client …

Objective To obtain insights into parents' information needs during the first year at home with their very preterm (VP) born infant. Methods We conducted semi-structured interviews with parents of VP infants participating in a post-discharge responsive parenting intervention (TOP program). Online interviews …

Current diets centered around animal products are causing serious threats to both publichealth and the environment. While other approaches are necessary for sustainable foodpractices and security, the protein transition—the shift from animal-based to moreplant-based diets—is essential yet challenging. …

Background and aim: Moderate preterm (MP) birth is associated with an increased risk of developmental problems. However, post-discharge support for this group is scarce. The aim of this study was to evaluate the feasibility of a post-discharge parenting program (TOP program) for MP infants. Three feasibility …