Although essential for providing optimal adolescent patient support, knowledge of the impact of Marfan syndrome in adolescence is limited. To explore adolescents’ perceived impact of Marfan syndrome on (physical) functioning (activities, participation), disability (limitations, restrictions), contextual …

There is a growing recognition that research and implementation projects should be carried out “with” or “by” young people with chronic conditions, instead of “about” or “for” them. The current study aimed to explore how young people with chronic conditions experience their involvement in a participatory …

This research aims to investigate factors that are inhibiting youth participation in Mamar system in Ponain Village, Indonesia. Mamar system was established since 1800s, had become main income generation activities for Ponain villagers until horticultural products were in demand in 1990s and 2000s. Until …

This thesis is about volunteer motivation and engagement. The research elaborates on the motivation and engagement of volunteers in the project InduS. Nowadays, a world without volunteers cannot be imagined. They get more and more important in every aspect of social life, for example volunteers are …

This article discusses the results of a study on children’s perspective (called: inner logic) on disciplinary conflicts with their (foster) parents. Most children accept parental authority, but also defend their personal autonomy and loyalties to peers. Only own children (children who live by their own …

Background: Marfan syndrome (MFS) is a heritable connective tissue disease caused by a defect in FBN1. The diagnosis is based on the revised Ghent criteria. The main features involve the cardiovascular, musculoskeletal, ophthalmic, pulmonary systems and facial features. Although the clinical manifestations …

Talent scouting at the Prince Claus Conservatoire takes place extramurally in youth orchestras, for example the Haydn Youth Orchestra, conducted by one of our faculty members, and in teachers’ private studios. Faculty members also teach master classes throughout Europe and function as jury members for …

Youth departing from secure youth care are often not well prepared for living on their own. This study aims to provide more insight into youth’s perspectives on what they need to improve their chances for successful return to and participation in Dutch society. The study is a first necessary step on a …