Voor jongeren en jongvolwassenen met verstandelijke beperkingen in combinatie met somatische of psychiatrische comorbiditeit is (volledige) zelfstandigheid en zelfredzaamheid niet haalbaar, blijft de rol van de ouders onverminderd groot en zijn de uitdagingen op sociaal gebied (participatie) vaak (nog) …

The objective of this study was to identify determinants of professionals’ intention to use the new board game SeCZ TaLK to facilitate sexual health discussions with young people with chronic health conditions and disabilities, and to gauge whether intention led to actual use. A cross-sectional web-based …

End-stage kidney disease (ESKD) may interfere with children’s developmental task of acquiringautonomy and participation. The Skills for Growing Up tool encourages normal development towards independence andautonomy during paediatric rehabilitation. This study aimed to adapt this self-management tool …

Hoofdstuk 24 van Handboek revalidatiepsychologie

Hoofdstuk 25 van Handboek revalidatiepsychologie

PURPOSE: To gain insight into the development of young persons with chronic conditions towards independence by comparing their lived experiences to those of their parents. METHODS: Semi-structured interviews were held with 16 young persons (7 males, 9 females; 15-22 years) and one of their parents …

Many children with profound intellectual and multiple disabilities (PIMD) now reach adulthood. The aim of this study was to elicit parents’ experiences with the transfer from pediatric to adult medical care. A convenience sample of 131 Dutch parents of young people with PIMD (16–26 years) completed a …

Ideas about people with disabilities have evolved dramatically since the 1950s – from individuals ‘suffering from illness’ and dependent on others, to today’s credo stressing participation and social inclusion. People with a disability are considered to have capacities and bear responsibility to achieve …

The majority of children treated in pediatric rehabilitation reach adulthood and develop into individuals with needs concerning sexuality and intimate relationships. However, because sexual health is rarely addressed during rehabilitation, some of these youngsters have unmet needs regarding the development …

Er komt steeds meer aandacht voor de overgang (transitie) van kind naar volwassenheid voor jongeren met chronische aandoeningen. Dit geldt ook voor de nefrologie. In deze transitiefase (16-24 jaar) staat de ontwikkeling naar autonomie en de overstap naar de zorg voor volwassenen centraal. Zelfstandig …