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Proceedings of the 6th IASSIDD Europe Congress: Value Diversity

Wissing, Maureen; Ulgiati, Aurora; Hobbelen, Johannes (Ageing And Allied Health Care); Neurology, UMCG; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Dekker, Alain

In light of current worldwide developments, the conference theme “Value Diversity” explicitly refers to the changes we need to see. This contribution is about Life expectancy of people with a severe or profound intellectual disability. Their life expectancy increases, which contributes to the risk of …

2021-07-01AlgemeenConferentiebijdrage

Variables related to the quality of life of families that have a child with severe to profound intellectual disabilities

van den Dries-Luitwieler, Nicole (Healthy Ageing, Allied Health Care And Nursing); Luijkx, J.; Salavati, M; Van der Schans, C P (Healthy Ageing, Allied Health Care And Nursing); Van der Putten, A. J.; Waninge, A (Healthy Ageing, Allied Health Care And Nursing)

Background: Family quality of life (FQoL) of families that have a child with severe to profound intellectual disabilities (SPID) is an important and emerging concept, however, related variables are inconclusive. Aim: To gain a better understanding of variables related to the FQoL of families that have …

2021-07AlgemeenAndersoortig materiaal

Focus group research into relevance, symptoms and training needs

Dekker, Alain; Wissing, Maureen; Ulgiati, Aurora; Bijl, Bas; van Gool, Gaby; Groen, Marieke; Grootendorst, Esther; van der Wal, Ina; Hobbelen, Johannes (Ageing And Allied Health Care); De Deyn, Peter; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

2021-07AlgemeenConferentiebijdrage

Dementia symptoms in persons with severe/profound intellectual disability:

Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Wissing, Maureen; Hobbelen, Johannes (Ageing And Allied Health Care); Fokkens, Andrea; Dekker, Alain; De Deyn, Peter

Aim Life expectancy of people with severe or profound intellectual disability (SPID) increases, which contributes to the risk of developing dementia. However, early detection and diagnosing dementia is complex, because of their low-level baseline functioning. Therefore, the aim is to identify observable …

2021-07AlgemeenConferentiebijdrage

How to foster successful implementation of a patient reported experience measurement in the disability sector

Marjolein van Rooijen; Anneke van Dijk-de Vries; Stephanie von Helden-Lenzen (Lid Lectoraat); Ruth Dalemans (Lid Lectoraat); Albine Moser (Lid Lectoraat); Sandra Beurskens

Background: The integrated uptake of patient-reported experience measures, using outcomes for the micro, meso and macro level, calls for a successful implementation process which depends on how stakeholders are involved in this process. Currently, the impact of stakeholders on strategies to improve …

2021-06-24GezondheidArtikel

Wat hebben begeleiders nodig om de dagelijkse activiteiten te laten toenemen van mensen met een verstandelijke en visuele beperking

Ilse Blanken (Student); Annemarie Dijkhuizen (Begeleider)

De fysieke fitheid van mensen met een verstandelijke en visuele beperking is laag. Ook spierkracht, als onderdeel van de fysieke fitheid, is verminderd bij deze groep. Dit zorgt mede voor een afname van de dagelijkse activiteiten. Door het aanbieden van krachttraining neemt de spierkracht bij deze doelgroep …

2021-06-09GezondheidBachelor

Prevalence of and relationship between adverse childhood experiences and family context risk factors among children with intellectual disabilities and borderline intellectual functioning

Jessica Vervoort-Schel; Gabriëlle Mercera; Inge Wissink; Peer van der Helm; Ramon J.L. Lindauer; Xavier Moonen (Lector)

Background: Adverse Childhood Experiences (ACEs) are an overlooked risk factor for behavioural, mental and physical health disparities in children with intellectual disabilities (ID) and borderline intellectual functioning (BIF). Aims: To gain insight into the presence of the 10 original Wave II ACEs …

2021-03-20GezondheidArtikel

Development and process evaluation of a motor activity program for people with profound intellectual and multiple disabilities

Van Alphen, H.J.M.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); Minnaert, Alexander; van der Putten, Annette Aj

Background: The support of people with profound intellectual and multiple disabilities (PIMD) rarely focused on motor activity, which might have negative consequences for the quality of life of these people. Evidence-based motor activity programs that present individually tailored and structural motor …

2021-03-20AlgemeenArtikel

Assessing the quality of support and discovering sources of resilience during COVID-19 measures in people with intellectual disabilities by professional carers

Femke Scheffers; Xavier Moonen (Lector); Eveline van Vugt

Background: During COVID-19 measures face-to-face contact is limited and professional carers have to find other ways to support people with intellectual disabilities. COVID-19 measures can increase stress in people with intellectual disabilities, although some people may adapt to or grow from these …

2021-01-28GezondheidArtikel

Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities

Hanzen, Gineke; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities); van Nispen, Ruth M A; Post, Wendy J.; van der Putten, A. A. J.; Vlaskamp, Carla

Background: We investigated the effects of the “Care for Participation+” (CFP+) intervention on direct support professionals’ (DSPs’) attitudes regarding the participation of adults with visual and severe or profound intellectual disabilities (VSPID). Methods: We implemented a pilot non-randomized controlled …

2021-01-01AlgemeenArtikel

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