Background: Marfan syndrome (MFS) is a heritable connective tissue disease caused by a defect in FBN1. The diagnosis is based on the revised Ghent criteria. The main features involve the cardiovascular, musculoskeletal, ophthalmic, pulmonary systems and facial features. Although the clinical manifestations …

Introduction The Integrated Recovery Scales (IRS) was developed by the Dutch National Expertise board for routine outcome monitoring with severe mental illnesses. This board aimed to develop a multidimensional recovery measure directed at 1. clinical recovery, 2. physical health, 3. social recovery (work, …

A B S T R A C T Purpose: To determine cross-sectional and longitudinal associations of environmental factors with frailty and disability. Methods: This study was conducted in a sample of Dutch citizens. At baseline the sample consisted of 429 subjects (aged ≥ 65 years); a subset of this sample participated …

Aim of the proposal and urban challenge it addresses* (max 200) The aim of this proposal is to develop an educational program with the provisional name ‘Care and Law’. The aim of this multidisciplinary educational program is to increase the knowledge of future professionals working at the intersection …

The proposal aims to present the first findings of the Better Together project in the Westerpark area of Amsterdam. The project targets three urgent - and connected- urban challenges: • firstly the increasing social isolation of older migrants and people with psychiatric histories; • secondly the need …

Introduction: The implementation of oncology care pathways that standardize organizational procedures has improved cancer care in recent years. However, the involvement of “authentic” patients and caregivers in quality improvement of these predetermined pathways is in its infancy, especially the scholarly …

Frailty is a state in which an older person has an increased risk for adverse health outcomes. Health professionals should be aware of frailty and the complexity of frailty. 4 frailty domains can be recognised; Physical, psychological, social and cultural. In the JASMIN project we do research in frail …

By studying the population pyramid of the Netherlands, two notable trends can be observed: the increase in 'grey pressure ' (population 65 and older, the upcoming 'baby boom generation ') and the decrease in the number of babies born. These trends are noticeable in the spectrum of care, where the population …

The increase of people living with chronic conditions has compelled society to develop and implement strategies that promote collaboration between patients and healthcare professionals, and which provide the patients with an active role in their care. In order to accomplish this, the World Health Organization, …

This scoping review focuses on the views of informal caregivers regarding the division of care responsibilities between citizens, governments and professionals and the question of to what extent professionals take these views into account during collaboration with them. In Europe, the normative discourse …