In Nederland groeien ruim 500.000 kinderen en jongeren op met een chronische aandoening of fysieke beperking. Het groeiende aantal jongeren met chronische aandoeningen stelt hoge eisen aan het zorgstelsel: er dreigt een discrepantie tussen vraag en aanbod van zorg te ontstaan. Juist de periode van de …

Facilitating persons with a chronic condition to take an active role in the management of their condition, implicates that nurses acquire new competencies. An instrument that can validly and reliably measure nurses’ performance and their perceived capacity to perform self-management support is needed …

Objective: Kidney transplant recipients face many self-management challenges. We aimed to identify profiles of attitudes towards self-management support (SMS) shortly after kidney transplantation. Methods: Profiles were generated using Q-methodology: In face-to-face interviews participants rankordered opinion …

Opgroeien met epilepsie stelt kinderen en jongeren voor extra uitdagingen op hun weg naar zelfstandigheid. Hierdoor bereiken zij minder vaak of later belangrijke mijlpalen in hun ontwikkeling. Een instrument om zelfstandigheid en autonomie bij jongeren met epilepsie te ondersteunen is de Epilepsie Groei-wijzer. …

AIMS: To unravel outpatient nurses' views on the role of people with chronic conditions in self-management, nurses' own support role and to establish how these views relate to nurse-led self-management interventions. BACKGROUND: Providing self-management support is a core task of nurses in outpatient …

Introduction Childhood-onset epilepsy during the years of transition to adulthood may affect normal social, physical, and mental development, frequently leading to psychosocial and health-related problems in the long term. Objective This study aimed to describe the main characteristics of patients in …

OBJECTIVE: To provide a systematic overview of self-management interventions (SMI) for young people with chronic conditions with respect to content, formats, theories, and evaluated outcomes. METHODS: Embase, Medline, PsycINFO, Web-of-Science, CINAHL, and Cochrane were searched. Reviews' reference …

Improving patient-provider communication during hospital consultations is advocated to enhance selfmanagement planning and transition readiness of adolescents with chronic conditions. This longitudinal mixed methods study evaluates the implementation and the outcomes of independent split-visit consultations and …

BACKGROUND: Online self-management diaries are used to support patients' self-management skills and facilitate associated behavioral changes. Although web-based diaries are well-known as a potential self-management tool, reasons that patients use (or do not use) self-management diaries, as well as …

BACKGROUND: After graduation, nurse practitioner students are expected to be capable of providing complex, evidence-based nursing care independently, combined with standardized medical care. The students who follow work-study programs have to develop their competencies in a healthcare environment dominated …