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Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Hans Kerstens; B.J.H. van Lith; M.J. Nijkrake; Bert de Swart; LAC van den Bemd; RJEM Smeets; F Klemens; BPC van de Warrenburg; P.J. van der Wees; A.C.H. Geurts

Background We aimed to identify healthcare needs, expectations, utilization, and the experienced treatment effects in a population of Dutch patients with hereditary spastic paraplegia (HSP). Methods We distributed an online questionnaire among 194 adult persons with HSP in the Netherlands, of which 166 …

2021AlgemeenArtikel

Validity and reliability of the mixing ability test as masticatory performance outcome in children with spastic cerebral palsy and children with typical development: A pilot study.

Lianne Remijn; J.A. Vermaire; M.W.G. Nijhui s-van de Sanden; B.E. Groen; C.M. Speksnijder

BACKGROUND: The mixing ability test (MAT) as an outcome measure of masticatory performance is largely used in studies with adults, but not yet with children. OBJECTIVE: This study aimed to test the construct validity and the test-retest reliability of the MAT in children with spastic cerebral palsy (CP) …

2018AlgemeenArtikel

Assessment of mastication in healthy children and children with cerebral palsy: a validity and consistency study.

Lianne Remijn; R. Speyer; B.E. Groen; P.C. Holtus; J. van Limbeek; M.W.G. Nijhuis -van der Sanden

The aim of this study was to develop the Mastication Observation and Evaluation instrument for observing and assessing the chewing ability of children eating solid and lumpy foods. This study describes the process of item definition and item selection and reports the content validity, reproducibility …

2013AlgemeenArtikel

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Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Validity and reliability of the mixing ability test as masticatory performance outcome in children with spastic cerebral palsy and children with typical development: A pilot study.

Assessment of mastication in healthy children and children with cerebral palsy: a validity and consistency study.

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