Views of people with a genetic condition are crucial in deliberations on human germline gene editing (HGGE), but their perspectives are at risk to be devalued due to epistemic injustice and insufficient attention for the possible sensitivities surrounding HGGE. This study set out to explore the perspectives …

Background For young people with rare conditions associated with intellectual disability, the transfer from paediatric to adult healthcare providers is often complicated. European Reference Network ERN-ITHACA (Intellectual disability, TeleHealth, Autism and Congenital Anomalies) on Rare Congenital Malformations …

Purpose: The aim of this study was to explore the functioning of people with lipoedema from their perspective. Methods: This was a qualitative study following a phenomenological perspective using individual in-depth interviews with a convenience sample of 13 Dutch people with lipoedema. The data were …

This study focuses on developing of a cost-effective and comprehensive physiotherapy protocol for the rehabilitation of patients with femur fractures complicated by osteomyelitis with significant muscle atrophy. The primary physiotherapeutic goal is to regain ambulatory mobility, ensure the safe progression …

Shared governance in hospitals promotes the inclusion of nurses' expertise, knowledge and skills in organisational processes, and nurses increasingly fulfil positions in organisational hierarchies. However, incorporating nursing expertise in strategic governance structures might be complicated, as these …

Energy policies are vital tools used by countries to regulate economic and social development as well as guar antee national security. To address the problems of fragmented policy objectives, conflicting tools, and over lapping initiatives, the internal logic and evolutionary trends of energy policies …

The Digital Product Passport (DPP) is emerging as a key solution in enhancing product transparency, sustainability, and traceability. A DPP serves as a digital record containing vital information about a product's lifecycle. As regulations tighten on sustainability and product circularity, the digital …

A goal of science education is for students to develop scientific literacy. Scientific literacy involves the acquisition of factual scientific knowledge and the ability to assess the credibility of scientific assertation. Furthermore, students should be able to include ethical considerations. Realising …

Collaboration in experimental learning, innovation, and transition environments such as Living Labs can be complicated to carry out in practice. Designers and design researchers are often involved in these processes based on their intrinsic emphasis on transformation of the status quo towards new ways …

The infrastructure we build is increasingly complicated and automated. After it is designed and constructed, it needs to be maintained and updated to sustain its functioning for far longer than the careers of its designers and builders. Continuity of engineering knowledge is necessary to make future …