The transition from adolescence to adulthood is a critical phase for young people living with perinatal HIV, who must navigate typical developmental milestones while managing a chronic illness and facing (fear of) societal stigma. This qualitative study explored the lived experiences of Dutch young adults …

BACKGROUND: In geriatric oncology, family members frequently accompany patients during medical consultations, providing emotional and practical support while participating in shared decision-making (SDM). Family involvement in SDM can facilitate the decision-making process but also pose challenges for …

Samenvatting Behandelbeslissingen voor oudere oncologie patiënten zijn vaak complex. Dit komt door de grote variatie in achtergrond, comorbiditeiten, functionele capaciteiten en de impact van kankerbehandelingen op zowel de levenskwaliteit als de levensverwachting. In deze context is samen beslissen, …

Background Families with intellectual disabilities are overrepresented in child protection systems. However, little is known about how adverse experiences co-occur in this population. This study examined the prevalence and interrelations of original and extended adverse childhood experiences (ACEs) and …

‘International Hub Center, a connective student village in Maastricht.’ Can a university city like Maastricht do better in getting international students involved in the local community and making them prolong their stay to the benefit of the city? From his own experience as a foreign student the designer …

Background and Objectives Collaboration between formal and informal caregivers is essential for providing good care to nursing home residents. Yet, ambiguity regarding mutual roles and responsibilities often impedes effective collaboration. To address this issue, we examined how formal caregivers, informal …

To prepare patients’ families for active care roles after discharge, a family involvement program was developed. We aimed to gain in-depth insight into patients’ well-being and experience during the program regarding the active involvement of family caregivers after oncological gastrointestinal cancer …

Family participation in essential care may be beneficial for both ICU patients and relatives [2]. It may also improve the patient’s comfort, safety and quality of care [5]. Furthermore, relatives may feel less powerless during the patient’s ICU stay when participating in care [2]. Most ICU healthcare …

BACKGROUND: Healthcare professionals in the hospital setting frequently assume primary caregiving responsibilities, which often leads family members to perceive this as standard practice during hospitalization. This dynamic may create a gap between actual and desired levels of family involvement. The …

Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …