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"Everyone sees you sitting there struggling with your food": experiences of adolescents and young adults with cerebral palsy

Lianne Remijn; Lenie van den Engel-Hoek; Ton Satink; Bert de Swart; Ria Nijhuis-van der Sanden

Objective: The impact of difficulties with eating and drinking in adolescents and young adults with cerebral palsy is unknown. The purpose of this study is to find out which difficulties adolescents and young adults with cerebral palsy experience with eating and drinking in daily life and how they deal …

2019AlgemeenArtikel

Validity and reliability of the mixing ability test as masticatory performance outcome in children with spastic cerebral palsy and children with typical development: A pilot study.

Lianne Remijn; J.A. Vermaire; M.W.G. Nijhui s-van de Sanden; B.E. Groen; C.M. Speksnijder

BACKGROUND: The mixing ability test (MAT) as an outcome measure of masticatory performance is largely used in studies with adults, but not yet with children. OBJECTIVE: This study aimed to test the construct validity and the test-retest reliability of the MAT in children with spastic cerebral palsy (CP) …

2018AlgemeenArtikel

Long-term deterioration of perceived health and functioning in adults with cerebral palsy

J.L. Benner; S.R. Hilberink; T. Veenis; H.J. Stam; W.M.A. van der Slot; M.E. Roebroeck

Objective To describe longitudinal change in perceived health, presence of health issues, and functional level in adults with cerebral palsy (CP). Design Prospective cohort study. Setting Participants' daily environment. Participants Adults (N=49) with CP (age range, 35–45y; 27 [55%] men; 36 [75%] …

2017-04-18GezondheidArtikel

Gross motor function in children with spastic cerebral palsy and cerebral visual impairment

Salavati, M; Rameckers, E A A; Waninge, A (Participation And Health Of Persons With Intellectual And Visual Disabilities); Krijnen, Wim (Statistical Techniques For Applied Research); Steenbergen, B.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing)

PURPOSE: To investigate whether the adapted version of the Gross Motor Function Measure-88 (GMFM-88) for children with Cerebral Palsy (CP) and Cerebral Visual Impairment (CVI) results in higher scores. This is most likely to be a reflection of their gross motor function, however it may be the result …

2017-01AlgemeenArtikel

Can mastication in children with cerebral palsy be analyzed by clinical observation, dynamic ultrasound and 3D kinematics?

Lianne Remijn; B.E. Groen; R. Speyer; J. van Limbeek; J.A. Vermaire; L. van den Engel-Hoek; M.W.G. Nijhuis -van der Sanden

The aim of this study was to explore the feasibility of the Mastication Observation and Evaluation (MOE) instrument, dynamic ultrasound and 3D kinematic measurements to describe mastication in children with spastic cerebral palsy and typically developing children. Masticatory movements during five trials …

2017AlgemeenArtikel

Reliability of the modified Gross Motor Function Measure-88 (GMFM-88) for children with both Spastic Cerebral Palsy and Cerebral Visual Impairment

Salavati, Masoud; Krijnen, Wim (Statistical Techniques For Applied Research); Rameckers, E.A.A.; Looijestijn, P.L.; Maathuis, C.G.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Steenbergen, B.

PURPOSE: The aims of this study were to adapt the Gross Motor Function Measure-88 (GMFM-88) for children with Cerebral Palsy (CP) and Cerebral Visual Impairment (CVI) and to determine the test-retest and interobserver reliability of the adapted version. METHOD: Sixteen paediatric physical therapists …

2015-07-25AlgemeenArtikel

Gross motor function, functional skills and caregiver assistance in children with spastic cerebral palsy (CP) with and without cerebral visual impairment (CVI)

Salavati, Masoud; Rameckers, E.A.A.; Steenbergen, B.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing)

Abstract Aim: To determine whether the level of gross motor function and functional skills in children with cerebral palsy (CP) and cerebral visual impairment (CVI) as well as caregiver assistance are lower in comparison with the corresponding group of children experiencing CP without CVI. Method: Data …

2014-04-24AlgemeenArtikel

The Pirate group intervention protocol description and a case report of a modified constraint-induced movement therapy combined with bimanual training for young children with unilateral spastic cerebral palsy

Aarts, Pauline B.; van Hartingsveldt, Margo (Faculteit Gezondheid); Anderson, Patricia G.; van den Tillaar, Ingrid; van der Burg, Jan; Geurts, Alexander C.

The purpose of this article was to describe a child-friendly modified constraint-induced movement therapy protocol that is combined with goal-directed task-specific bimanual training (mCIMT-BiT). This detailed description elucidates the approach and supports various research reports. This protocol is …

2012-06AlgemeenArtikel

Gait in children with cerebral palsy

Maathuis, Karel G.B.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); van Iperen, Andries; Rietman, Hans S.; Geertzen, Jan H.B.

The aim of this study was to test the inter- and intraobserver reliability of the Physician Rating Scale (PRS) and the Edinburgh Visual Gait Analysis Interval Testing (GAIT) scale for use in children with cerebral palsy (CP). Both assessment scales are quantitative observational scales, evaluating gait. …

2005-04-16AlgemeenArtikel

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