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The neglected puzzle of dementia in people with severe/profound intellectual disabilities

A systematic literature review of observable symptoms

The neglected puzzle of dementia in people with severe/profound intellectual disabilities

A systematic literature review of observable symptoms

Samenvatting

BACKGROUND: Dementia is increasingly prevalent in people with severe/profound intellectual disabilities. However, early detection and diagnosis of dementia is complex in this population. This study aimed to identify observable dementia symptoms in adults with severe/profound intellectual disabilities in available literature. METHOD: A systematic literature search was conducted in PubMed, PsycINFO and Web of Science with an exhaustive search string using a combination of search terms for severe/profound intellectual disabilities and dementia/ageing. RESULTS: Eleven studies met inclusion criteria. Cognitive decline, behavioural and psychological alterations, decline in activities of daily living as well as neurological and physical changes were found. CONCLUSIONS: Only a very limited number of studies reported symptoms ascribed to dementia in adults with severe/profound intellectual disabilities. Given the complexity of signalling and diagnosing dementia, dedicated studies are required to unravel the natural history of dementia in this population.

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OrganisatieHanzehogeschool Groningen
LectoraatHealthy Ageing, Allied Health Care and Nursing
Gepubliceerd inMental Handicap Research Wiley-Blackwell
Datum2021-07-04
TypeAndersoortig materiaal
ISSN1360-2322
DOI10.1111/jar.12920
TaalEngels

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