Background For young people with rare conditions associated with intellectual disability, the transfer from paediatric to adult healthcare providers is often complicated. European Reference Network ERN-ITHACA (Intellectual disability, TeleHealth, Autism and Congenital Anomalies) on Rare Congenital Malformations …

Introduction The process of transition from paediatric to adult care is a crucial step towards self-management of healthcare for young adults with chronic health conditions. In the Netherlands, the On Your Own Feet program offers an extensive framework for supporting optimal transition. In this national …

In solving systemic design challenges, designers co-create with professionals from various fields. In the context of innovation in healthcare practices, this study investigates design abilities that healthcare professionals develop by participating in co-design projects. We conducted a mixed-methods …

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

Background and purpose In the Netherlands, the 2022 Quality Standard 'Youth in transition from paediatric to adult care' underscores the importance of structured transitional care for young adults with chronic health conditions. Despite this emphasis, detailed knowledge about transition programs and …

Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems …

Background: Burn scar maturation can take several years but is generally studied shortly after injury. Therefore, we investigated patient-reported scar quality up to 5–7 years post-burn. Methods: Patients with ≤ 20 % total body surface area burned completed the Patient Scale of the Patient and Observer …

Objective: To conduct a capacity and needs assessment identifying important factors for the successful implementation of an oral health coach (OHC) at well-baby clinics. This Toddler Oral Health Intervention (TOHI) provides oral health promotion to parents to prevent early childhood caries. Methods: …

In solving systemic design challenges designers co-create with professionals from various fields. In the context of innovation in healthcare practices, this study investigates design abilities that healthcare professionals develop by participating in co-design projects. We conducted a mixed-methods research …

Background Children with developmental language disorders (DLD) face ongoing challenges in language and communication, impacting their learning, literacy, social interactions, and emotional well-being. Speech and language therapy interventions have been shown to positively influence the language abilities …