Background and purpose A generic, structured transitional care pathway dedicated to patients in the academic setting is currently lacking. This study aimed to identify the key factors influencing a successful transition from pediatric to adult care for adolescents and young adults and to develop a generic, …

Addiction is a major social problem that affects not only the person with these problems but also causes harm to family members, for example, by domestic violence, abuse, and neglect. They are often called Affected Family Members (AFMs). While the adverse effects of parental substance use on children …

Background: Family members of relatives with addiction (often referred to as Affected Family Members [AFMs]) experience potentially traumatic events, including psychological violence, physical violence, sexual violence, death, or accidents of relatives due to addiction. Objective: This study explores …

Background For young people with rare conditions associated with intellectual disability, the transfer from paediatric to adult healthcare providers is often complicated. European Reference Network ERN-ITHACA (Intellectual disability, TeleHealth, Autism and Congenital Anomalies) on Rare Congenital Malformations …

Introduction The process of transition from paediatric to adult care is a crucial step towards self-management of healthcare for young adults with chronic health conditions. In the Netherlands, the On Your Own Feet program offers an extensive framework for supporting optimal transition. In this national …

Background and aim Addiction problems also affect the lives of family members. This study aims to examine: (1) young adult family members’ experiences with informal and professional support in coping with the impact of relatives’ addiction problems and (2) how these experiences evolve over time. Method A …

Introduction: Health-related quality of life (HRQoL) in adult people with HIV is lower than that of the general population. Previously, no differences were detected in HRQoL of Dutch children with perinatal HIV (PHIV) compared with norm groups. In this study, we compared HRQoL of PHIV young adults (PHIV-YA, …

Purpose: The Scored Patient-Generated Subjective Global Assessment (PG-SGA©) is a validated nutritional screening, assessment, triage, and monitoring tool. The aim of this study was to perform translation, cultural adaptation, linguistic, and content validation of the translated and culturally adapted …

This study explores the perceptions of young people in Gitega, Burundi, regarding gendernorms and intimate partner violence against women (IPVAW), comparing in particularyoung people from Abatangamuco households with those from non-Abatangamucohouseholds. The Abatangamuco movement, a local initiative …

Background and purpose In the Netherlands, the 2022 Quality Standard 'Youth in transition from paediatric to adult care' underscores the importance of structured transitional care for young adults with chronic health conditions. Despite this emphasis, detailed knowledge about transition programs and …