Background Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. …

Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify …

BACKGROUND: It is difficult to diagnose constipation for people with severe or profound intellectual disabilities. Definitions for this are ambiguous, and the symptoms and signs are often unnoticed. The aim of this study is to identify clear definitions of constipation for people with different levels …

Bewegen is van waardevol maar zeker niet vanzelfsprekend voor mensen met EMB. In deze workshop gaan we in op het belang van bewegen van de doelgroep, hoe bewegen kan worden geïntergreerd in het dagprogramma en wat het oplevert.

Background: While the participation of adults with visual and severe or profound intellectual disabilities (VSPID) in society and community life is important, evidence-based interventions to improve their participation are lacking. We conducted a process evaluation of the implementation of ‘Care for …

Background: The extent of participation of adults with visual and severe or profound intellectual disabilities (VSPID) is unclear. Aims: To explore participation of adults with VSPID and the association between occurrence and importance of aspects of participation. Methods: Individual support plans (ISPs) …

BACKGROUND: The available opinions regarding participation do not appear to be applicable to adults with visual and severe or profound intellectual disabilities (VSPID). Because a clear definition and operationalization are lacking, it is difficult for support professionals to give meaning to participation …