There are few better examples of the need for data sharing than in the rare disease community, where patients, physicians, and researchers must search for "the needle in a haystack" to uncover rare, novel causes of disease within the genome. Impeding the pace of discovery has been the existence of many …

1e alinea column: Life happens to you while you are busy making other plans, J. Lennon Hoe komen succesvolle innovaties in de internettijd tot stand? Toeval, geluk, reputatie en timing blijven een rol spelen, maar social media en 24*7 wereldwijd verbonden maken het spel wel anders dan vroeger.