Although essential for providing optimal adolescent patient support, knowledge of the impact of Marfan syndrome in adolescence is limited. To explore adolescents’ perceived impact of Marfan syndrome on (physical) functioning (activities, participation), disability (limitations, restrictions), contextual …

More and more network interventions are developing at neighborhood level, with the aim of strengthening the network (in the neighborhood) of people with a disability. Some interventions are of a temporary nature, while others are structurally In this study, the various neighborhood-oriented network interventions …

Background People with activity limitations participate less in society, which may be due to both societal barriers and personal factors. The aim of this study was to examine the role of one specific personal factor, namely the perceptions that people have of their health condition. We hypothesized …

Objective: The objective of this scoping review is threefold: (1) to describe outcomes of and determinants for physical functioning in pediatric intensive care unit (PICU) survivors evaluated during and/or after their PICU stay, (2) to provide an overview how physical functioning and its associated determinants …

Achtergrond: Coxartrose wordt vaak in het eindstadium behandeld met een Totale Heup Artroplastiek (THA). In de postoperatieve fase na een THA varieert het fysiotherapeutische beleid. Mogelijk leidt een verhoogd BMI tot een trager functioneel herstel na een THA. Een aangepast revalidatietraject zou dan …

There is a growing recognition that research and implementation projects should be carried out “with” or “by” young people with chronic conditions, instead of “about” or “for” them. The current study aimed to explore how young people with chronic conditions experience their involvement in a participatory …

Op verzoek van organisaties uit de jeugdzorg is vanuit het perspectief van Disability Studies een instrument ontwikkeld, Mijn Pad, met bijpassende begeleidingsmethodiek die het exploratieproces van jongeren in hun ontwikkeling naar autonomie en participatie kan faciliteren. Mijn Pad past bij drie doelstellingen …

Purpose: Employment of young adults with chronic physical conditions entering the labor market after finishing post-secondary education remains behind compared to typically developing peers. The aim of this study is to evaluate changes in their paid employment levels after following a vocational rehabilitation …

Although the literature consistently shows an association between parental substance use disorders (SUDs) and child abuse, it is unknown what factors discern non-abusive and abusive parents with SUDs. This study aims to investigate which specific risk factors are associated with child abuse in clinically …