OBJECTIVES: The use of stakeholders in systematic reviews is increasingly valued, but their influence on the systematicity of the review is often unclear. The aim of this study was to describe some of the processes of involvement of stakeholders and to demonstrate a Tool for Recording and Accounting …

OBJECTIVE: To provide a systematic overview of self-management interventions (SMI) for young people with chronic conditions with respect to content, formats, theories, and evaluated outcomes. METHODS: Embase, Medline, PsycINFO, Web-of-Science, CINAHL, and Cochrane were searched. Reviews' reference …

Improving patient-provider communication during hospital consultations is advocated to enhance selfmanagement planning and transition readiness of adolescents with chronic conditions. This longitudinal mixed methods study evaluates the implementation and the outcomes of independent split-visit consultations and …

End-stage kidney disease (ESKD) may interfere with children’s developmental task of acquiringautonomy and participation. The Skills for Growing Up tool encourages normal development towards independence andautonomy during paediatric rehabilitation. This study aimed to adapt this self-management tool …

Er komt steeds meer aandacht voor de overgang (transitie) van kind naar volwassenheid voor jongeren met chronische aandoeningen. Dit geldt ook voor de nefrologie. In deze transitiefase (16-24 jaar) staat de ontwikkeling naar autonomie en de overstap naar de zorg voor volwassenen centraal. Zelfstandig …

Camp COOL is een activiteitenkamp voor 16 – 25 jarigen met een chronische nieraandoening. ‘COOL’ staat voor Communicatie, Ontplooiing, Ontmoeting en Lol. Het kamp wil jongeren ondersteunen bij het ontwikkelen van zelfstandigheid tijdens de transitieperiode van kindertijd naar volwassenheid. Uniek aan …

Discrepancy between self-reports and parent-proxy reports of adolescent health-related quality of life (HRQoL) has been repeatedly acknowledged in the literature as the proxy problem. However, little is known about the extent and direction of this discrepancy. The purpose of this study is to explore …