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How chronic pain changes a person's life story in relation to participation in occupational roles: A narrative exploration

P Strub; Ton Satink; BE Gantschnig

Background Chronic pain (CP) affects a large part of the population worldwide, decreasing physical and mental health and causing a shift in occupational roles. This has created a need for a better understanding to address this problem. Objectives To explore possible changes in occupational roles and …

2021AlgemeenArtikel

Mixed methods evaluation of a self-management group programme for patients with neuromuscular disease and chronic fatigue

Y Veenhuizen; Ton Satink; Maud Graff; A.C.H. Geurts; JT Groothuis; B.G.M. van Engelen; Ria Nijhuis-van der Sanden; E.H.C. Cup

Objective To obtain insight into experiences of patients with a neuromuscular disease and chronic fatigue and their healthcare professionals regarding content and delivery of a multidisciplinary outpatient self-management group programme to improve social participation. This will inform future implementation. …

2021AlgemeenArtikel

Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Hans Kerstens; B.J.H. van Lith; M.J. Nijkrake; Bert de Swart; LAC van den Bemd; RJEM Smeets; F Klemens; BPC van de Warrenburg; P.J. van der Wees; A.C.H. Geurts

Background We aimed to identify healthcare needs, expectations, utilization, and the experienced treatment effects in a population of Dutch patients with hereditary spastic paraplegia (HSP). Methods We distributed an online questionnaire among 194 adult persons with HSP in the Netherlands, of which 166 …

2021AlgemeenArtikel

Enabling visibility of the clinician-scientists' knowledge broker role: a participatory design research in the Dutch nursing-home sector

Margot Barry; Wietske Kuijer; A. Persoon; Loek Nieuwenhuis; N. Scherpbier

Background A group of clinician-scientists and managers working within a Dutch academic network, experienced difficulties in clearly defining the knowledge broker role of the clinician-scientists. They found no role clarity in literature, nor did they find tools or methods suitable for clinician-scientists. …

2021AlgemeenArtikel

How do community based dementia friendly initiatives work for people with dementia and their caregivers, and why? A rapid realist review

Marjolein Thijssen; R. Daniels; M. Lexis; R. Jansens; J. Peeters; N. Chadborn; Ria Nijhuis-van der Sanden; Maud Graff

2021AlgemeenArtikel

Maximum Repetition Rate in a large cross-sectional sample of typically developing Dutch-speaking children

Sanne Diepeveen; L van Haaften; H Terband; Bert de Swart; Lenie van den Engel-Hoek; B Maassen

2021AlgemeenArtikel

Setting meaningful goals in rehabilitation: A qualitative study on the experiences of clients and clinicians in working with a practical tool

E. Littooij; S. Doodeman; J. Holla; M. Ouwerkerk; L. Post; Ton Satink; A.M. ter Steeg; J. Vloothuis; J Dekker; v. de Groot

2021AlgemeenArtikel

Impliciet of expliciet? Motorisch leren binnen de neuro-revalidatie

Li-Juan Jie (Lid Lectoraat)

Mensen met een niet-aangeboren hersenletsel of een chronische neurologische aandoening moeten vaak dagelijkse activiteiten opnieuw leren, zoals lopen of opstaan vanuit een stoel. Fysiotherapeuten spelen een belangrijke rol bij het (opnieuw) leren van deze activiteiten en andere vaardigheden. Voor hen …

2020-11-01GezondheidArtikel

Meet and eat, an interdisciplinary group intervention for patients with myotonic dystrophy about healthy nutrition, meal preparation, and consumption: a feasibility study

Suzanne van Hees; S. Knuijt; H Dicke; JT Groothuis; J Raaphorst; Ton Satink; Edith Cup

Purpose: To develop and evaluate an interdisciplinary group intervention for patients with myotonic dystrophy regarding healthy nutrition, meal preparation, and consumption, called Meet and Eat. Materials and methods: A design-based approach was used, exploring experiences and needs of patients with …

2020AlgemeenArtikel

Experienced consequences of spasticity and effects of botulinum toxin injections: a qualitative study amongst patients with disabling spasticity after stroke

Hans Kerstens; Ton Satink; M.J. Nijkrake; Bert de Swart; Ria Nijhuis-van der Sanden; Philip van der Wees; A.C.H. Geurts

Purpose:Chronic spasticity poses a major burden on patients after stroke. Intramuscular botulinum toxin injections constitute an important part of the treatment for patients suffering from troublesome focal spasticity. This study explores the experienced consequences of chronic spasticity amongst patients …

2020AlgemeenArtikel

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