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Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health

Warnink-Kavelaars, Jessica; de Koning, Lisanne E. (Lectoraat Fysiotherapie -Bewegen Naar Preventieve Zorg); Rombaut, Lies; Menke, Leonie A.; Alsem, Mattijs W.; van Oers, Hedy A.; Buizer, Annemieke I.; Engelbert, Raoul H. H. (Urban Vitality); Oosterlaan, Jaap

The psychosocial consequences of growing up with Heritable Connective Tissue Disorders (HCTD) are largely unknown. We aimed to assess Health-Related Quality of Life (HRQoL) and mental health of children and adolescents with HCTD. This observational multicenter study included 126 children, aged 4–18 years, …

2022-07AlgemeenArtikel

Trust in Clinical AI: Expanding the Unit of Analysis

Browne, Jacob T.; Bakker, Saskia; Yu, Bin; Lloyd, Peter; Ben Allouch, Somaya (Lectoraat Digital Life)

From diagnosis to patient scheduling, AI is increasingly being considered across different clinical applications. Despite increasingly powerful clinical AI, uptake into actual clinical workflows remains limited. One of the major challenges is developing appropriate trust with clinicians. In this paper, …

2022-06-15AlgemeenConferentiebijdrage

Sedentary Behaviour Intervention as a Personalised Secondary Prevention Strategy (SIT LESS) for patients with coronary artery disease participating in cardiac rehabilitation: rationale and design of the SIT LESS randomised clinical trial

B M A van Bakel; S H Kroesen; A Günal; A Scheepmaker; W R M Aengevaeren; F F Willems; R Wondergem (Onderzoeker); M F Pisters (Lector); J Dam; A M Janssen; M de Bruin; M T E Hopman; D H J Thijssen; T M H Eijsvogels

Patients with coronary artery disease (CAD) are more sedentary compared with the general population, but contemporary cardiac rehabilitation (CR) programmes do not specifically target sedentary behaviour (SB). We developed a 12-week, hybrid (centre-based+home-based) Sedentary behaviour IntervenTion as …

2022-05-25GezondheidArtikel

Effectofapre-operativeweb-baseddietaryselfmanagement interventiononpatientsatisfaction,body weightandqualityof lifeofesophagealcancerpatients:A prospective,observationalstudy

Daniëlle Adriaans; Sandra Beijer; Fanny Heesakkers; Lisette de Craen-Kat; Nicole Horevoorts; Angelique Dierick-van Daele (Lector); Joep Teijink; Hanneke van Laarhoven; Lonneke van de Poll-Franse; Grard Nieuwenhuijzen

Summary Purpose The purpose of this study was to investigate the adoption and actual use of a digital dietary monitoring system (DDMS) and its impact on patient satisfaction with the provided hospital care, body weight changes and health-related quality of life (HRQoL) in patients with potentially curable …

2022-05-09GezondheidArtikel

Translation and cultural adaptation of the scored Patient-Generated Subjective Global Assessment (PG-SGA©)

Tobberup, Randi; Jager-Wittenaar, Harriët (Malnutrition And Healthy Ageing); Sørensen, Jonas; Kopp, Luise H. P.; Svarstad, Pernille; Sætre, Pia; Ottery, Faith D.

Background and aim: The Patient-Generated Subjective Global Assessment (PG-SGA©) is a globally used malnutrition screening, assessment, triage and monitoring tool. The aim of this study was to perform a linguistic and content validation of the translated and culturally adapted version of the PG-SGA for …

2022-02Gezondheid; …Artikel

Physical activity monitoring during hospital stay

Karin Valkenet (Onderzoeker); Petra Bor (Onderzoeker); Elja Reijneveld (Onderzoeker); Cindy Veenhof (Lector); Jaap Dronkers (Onderzoeker)

Purpose: The primary aim of this study was to investigate the concurrent validity of the PAM AM400 accelerometer for measuring physical activity in usual care in hospitalized patients by comparing it with the ActiGraph wGT3X-BT accelerometer. Materials and methods: This was a prospective single centre …

2022GezondheidArtikel

A Japanese translation, cultural adaptation, and linguistic and content validity confirmation of the Scored Patient-Generated Subjective Global Assessment

Miura, Tomofumi; Elgersma, Rikako; Okizaki, Ayumi; Kazawa Inoue, Mihoko; Amano, Koji; Mori, Masano; Chitose, Haruka; Matsumoto, Yoshihisa; Jager-Wittenaar, Harriët (Malnutrition And Healthy Ageing); Ottery, Faith

Purpose: The Scored Patient-Generated Subjective Global Assessment (PG-SGA©) is a globally recognized and used nutritional screening, assessment, monitoring, and triaging tool. The aim of this study was to translate and culturally adapt the original English PG-SGA for the Japanese speaking populations …

2021-12-01Gezondheid; …Artikel

Management of post‑acute COVID‑19 patients in geriatric rehabilitation

Jolanda C.M. van Haastregt; Irma H. J. Everink; Jos M.G.A. Schols; Stefan Grund; Marije Holstege (Lector); Francesco Landi; Laura M. Pérez; Esther Roquer; Martin Smalbrugge; Wilco P. Achterberg

Key summary points Aim To describe a guidance on the management of post-acute COVID 19 patients in geriatric rehabilitation. Findings This guidance addresses general requirements for post-acute COVID-19 geriatric rehabilitation and critical aspects for quality assurance during the COVID-19 pandemic. …

2021-11-20GezondheidArtikel

Parenting a child with Marfan syndrome

Warnink-Kavelaars, Jessica; van Oers, Hedy A.; Haverman, Lotte; Buizer, Annemieke I.; Alsem, Mattijs W.; Engelbert, Raoul H. H. (Urban Vitality); Menke, Leonie A.

Marfan syndrome (MFS) is a multisystemic, autosomal dominant connective tissue disorder that occurs de novo in 25%. In many families, parent and child(ren) are affected, which may increase distress in parents. To assess distress, 42 mothers (29% MFS) and 25 fathers (60% MFS) of 43 affected children, …

2021-01AlgemeenArtikel

The NUPHAC-EU Framework for Nurses’ Role in Interprofessional Pharmaceutical Care

Elyne De Baetselier (Onderzoeker); Bart Van Rompaey (Onderzoeker); Nienke Dijkstra (Onderzoeker); Carolien Sino (Onderzoeker); Kevin Akerman (Onderzoeker); Luis M da Cunha Batalha (Onderzoeker); María I D Fernández (Onderzoeker); Izabela Filov (Onderzoeker); Vigdis Abrahamsen Grøndahl (Onderzoeker); Jana Heczkova (Onderzoeker); Ann Karin Helgesen (Onderzoeker); Sarah Keeley (Onderzoeker); Petros Kolovos (Onderzoeker); Gero Langer (Onderzoeker); Sabina Ličen (Onderzoeker); Manuel Lillo-Crespo (Onderzoeker); Alba Malara (Onderzoeker); Hana Padyšáková (Onderzoeker); Mirko Prosen (Onderzoeker); Dorina Pusztai (Onderzoeker); Bence Raposa (Onderzoeker); Jorge Riquelme-Galindo (Onderzoeker); Jana Rottková (Onderzoeker); Francesco Talarico (Onderzoeker); Styliani Tziaferi (Onderzoeker); Tinne Dilles (Onderzoeker)

Clear role descriptions promote the quality of interprofessional collaboration. Currently, it is unclear to what extent healthcare professionals consider pharmaceutical care (PC) activities to be nurses’ responsibility in order to obtain best care quality. This study aimed to create and evaluate a framework …

2021GezondheidArtikel

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