Hoofdstuk 25 van Handboek revalidatiepsychologie

PURPOSE: To gain insight into the development of young persons with chronic conditions towards independence by comparing their lived experiences to those of their parents. METHODS: Semi-structured interviews were held with 16 young persons (7 males, 9 females; 15-22 years) and one of their parents …

Many children with profound intellectual and multiple disabilities (PIMD) now reach adulthood. The aim of this study was to elicit parents’ experiences with the transfer from pediatric to adult medical care. A convenience sample of 131 Dutch parents of young people with PIMD (16–26 years) completed a …

Ideas about people with disabilities have evolved dramatically since the 1950s – from individuals ‘suffering from illness’ and dependent on others, to today’s credo stressing participation and social inclusion. People with a disability are considered to have capacities and bear responsibility to achieve …

The majority of children treated in pediatric rehabilitation reach adulthood and develop into individuals with needs concerning sexuality and intimate relationships. However, because sexual health is rarely addressed during rehabilitation, some of these youngsters have unmet needs regarding the development …

Er komt steeds meer aandacht voor de overgang (transitie) van kind naar volwassenheid voor jongeren met chronische aandoeningen. Dit geldt ook voor de nefrologie. In deze transitiefase (16-24 jaar) staat de ontwikkeling naar autonomie en de overstap naar de zorg voor volwassenen centraal. Zelfstandig …

In dit project is de interventie TraJect geïmplementeerd in twee nieuwe revalidatiecentra en is een derde centrum getraind om de interventie te geven. Doelstellingen van het huidige project waren A) het ontwikkelen en toepassen van de train-de-trainer cursus, B) lokale netwerk vorming in revalidatie …

This study evaluated the feasibility and appreciation of a new educational board game (SeCZ TaLK) that stimulates communication on sexuality and intimate relationships in youth with chronic conditions.

Purpose: To explore associations between adolescents’ perception of their readiness to transfer to adult care and socio-demographic and disease-related characteristics, effect of the condition, self-management ability, and attitude toward transition.

Transitie van kinderzorg naar volwassenenzorg.