Heritable Connective Tissue Disorders (HCTD) show an overlap in the physical features that can evolve in childhood. It is unclear to what extent children with HCTD experience burden of disease. This study aims to quantify fatigue, pain, disability and general health with standardized validated questionnaires. …

Onderzoeksrapport in opdracht van het Lectoraat Kind, Taal en Ontwikkeling. De ouder-kind-interactie is van grote significantie voor de ontwikkeling van goede hechting, emotionele-, sociale- en cognitieve ontwikkeling en het fysieke welbevinden van de baby. Achterstanden in deze ontwikkelingen kunnen …

In this study, we analyze in-depth interviews conducted with 26 Dutch third-graders as well as interviews with one of each child’s parents. The children attended one of six schools, each with a relatively large population of families with a low socioeconomic status, where home-based literacy assignments …

Marfan syndrome (MFS) is a multisystemic, autosomal dominant connective tissue disorder that occurs de novo in 25%. In many families, parent and child(ren) are affected, which may increase distress in parents. To assess distress, 42 mothers (29% MFS) and 25 fathers (60% MFS) of 43 affected children, …

Parental support is critical for young children’s language and literacy development. It is important that teachers are aware of this parental role. Particularly in the case of lower‐educated parents, teachers can improve their education when they engage parents in partnerships to support young children’s …

Northern Cyprus is a de facto state in the eyes of the international community. Its independence has been deemed illegitimate by the United Nations as it is seen as an occupied territory by Turkey. Therefore, Turkey is the only country in the world that recognizes the so-called Turkish Republic of Northern …

Even though Parenting Capacity Assessments (PCAs) are essential for child protection services to support placement decisions for maltreating families, presently no evidence-based PCA protocols are available. In this randomized controlled trial, we tested the quality of an attachment-based PCA protocol …

This chapter describes the lessons learnt from 10 years of the On Your Own Feet transitional care quality improvement programs in the Netherlands. It uses a framework that encompasses eight key elements of transitional care: youth participation, team collaboration, future-oriented, co-ordination, continuity …

The European policy emphasis on providing informal care at home causes caregivers and home care professionals having more contact with each other, which makes it important for them to find satisfying ways to share care. Findings from the literature show that sharing care between caregivers and professionals …

Purpose Cancer‐related fatigue is one of the most distressing side effects of childhood cancer treatment. Physical activity can decrease fatigue and has positive effects on other health outcomes. Most research on physical activity pertains to adults, and the few studies that focus on children have limited …