In the Netherlands, many parents of children with profound intellectual and multiple disabilities care for their children at home. Little is known about how parents and involved healthcare professionals share and align medical care for these children. This study aims to contribute to a better understanding …

Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems …

Jongerenwerkers steken veel tijd en energie in het opbouwen en onderhouden van relaties met jongeren. Dat wordt door andere professionals vaak niet begrepen of gewaardeerd. Onderzoekers en jongerenwerkers geven inzicht in de ethische praktijkkanten van jongerenwerk. Jongerenwerkers bewegen in een ethisch …

Background Parenting a child with profound intellectual and multiple disabilities has great implications. Parents generally rely heavily on healthcare and social welfare services in caring for the child at home. Previous studies indicated mismatch between what parents need to preserve family and personal …

Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon “parenting a child with PIMD.” Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research. Findings: The …

De laatste jaren is er kritiek geweest op de neiging van hbo-opleidingen om het afstuderen te veel in te richten zoals universiteiten dat doen. In plaats van afstuderen op een onderzoekscriptie zouden hbo-studenten moeten afstuderen op authentieke beroepsproducten. De opleiding tot verpleegkundige van …