Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon “parenting a child with PIMD.” Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research. Findings: The …

The current study analyzed blogs written by four Dutch parents of children with profound intellectual and multiple disabilities, with the aim of deepening the understanding of the parents’ concerns. Thematic analysis was conducted and five main themes were identified: Dealing with uncertainties addressed …

The problem of single-use personal protective equipment (PPE) made from non-renewable resources polluting the environment encouraged the creation of a circular face mask. The main factors that influence the design of a face mask that protects the user from COVID-19 were investigated. According to the …

Dit betreft een publicatie voor de doelgroep met wie ik onderzoek doe, ouders van kinderen met ZE(V)MB. Informatie van website: ZeldSamen biedt informatie, contact en herkenning voor ouders na de diagnose van een zeldzaam genetisch syndroom. We willen ouders, familieleden en ook de kinderen en volwassenen …

Currently the advances in the field of 3D printing are causing a revolution in the (bio-)medical field. With applications ranging from patient-specific anatomical models for surgical preparation to prosthetic limbs and even scaffolds for tissue engineering, the possibilities seem endless. Today, the …

Het eenduidige antwoord op de onderzoeksvraag ‘Hoe bereiden jongsenioren zich voor op hun mogelijke kwetsbaarheid in gezondheid en welzijn op de lange termijn’ is dat jongsenioren zich nauwelijks voorbereiden op hun kwetsbaarheid in de toekomst en het beste benaderd kunnen worden vanuit hun situatie …

Quality of life serves a reference against which you can measure the various domains of your own life or that of other individuals, and that can change over time. This definition of the World Health Organization encompasses many elements of daily living, including features of the individual and the environment …