Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

Background Family participation in essential care may benefit patients and relatives. Aims To examine the needs, perceptions and preferences of health care providers about family participation in essential care in the adult intensive care unit. Study design A qualitative descriptive study using inductive …

Background Early onset dementia (EOD) presents unique challenges, particularly in managing anxiety, stress, and sleep disturbances. Within the Young-D project, the project partners developed workshop programme for people with EOD, with the aim to address these issues. The Young-D programme was piloted …

This study examines the reasons of people with dementia request euthanasia and how these reasons change over time with a special focus on reasons related to family. In addition, it examines how family relates to their loved one’s euthanasia wish. Seven people with dementia and a euthanasia wish in the …

In the final stage of people’s life, family caregivers spend an average of 26 hours a week providing informal care at home. While this care can be rewarding, it can also lead to overburdening and increase the need for support. Despite the efforts of healthcare providers, many family caregivers feel that …

BACKGROUND: Informal care is an essential part of support provided in the homecare setting. To ensure effective healthcare provision, good communication and collaboration between informal and formal care providers are crucial. To achieve this aim, it is necessary to have a clear understanding of the …

Online letter to the editor Rihimi-Bashar et al (1)

Workshop minor Gezond Opgroeien

Background: To prevent deterioration after admission to the intensive care unit (ICU), and to improve rehabilitation, the ICU team should use digital technologies to provide comprehensive and practical information alongside personalised support for survivors and their family members. However, a knowledge …

Aim: To examine the motives of people with dementia who desire euthanasia with a special focus on reasons related to family or relationships. In addition we aim to assess how family of people with dementia experience their situation and responsibilities and how this might change.Method: Fourteen interviews …