Objective: The purpose of this study was to investigate how mechanical ventilation-dependent adults with neuromuscular disorders experience their occupational and social participation. Methods: Data were collected through two successive focusgroup discussions with six men (aged 23–40 years) living in …

BACKGROUND: Understanding of the consequences of a neuromuscular disease (NMD) can improve when a valid sample of disease-specific categories based on the International Classification of Functioning, Disabilities, and Health (ICF) is available. OBJECTIVE: To examine the content validity of the initial …

To explore consultation reports for patient and employment characteristics and recommendations on employment regarding patients with neuromuscular diseases (NMDs). Eighty percent of the included consultation reports contained information on employment. Less than half the patients with NMD were employed, …

Aanleiding Doormiddel van een literatuurstudie inzicht in verschillende revalidatieprocessen bij een voorste kruisbandlaesie krijgen. Om zo het effectiefste revalidatie proces vast te stellen. Probleemstelling Wat is het meest effectieve revalidatieproces bij een persoon na een voorste kruisbandlaesie? Methode Voor …

Aanleiding: Jaarlijks lopen 600.000 mensen in Nederland enkelletsel op. 50% hiervan ontstaat tijdens het sporten. Er komen jaarlijks 87.000 mensen met een enkelblessure bij de fysiotherapeut en in totaal worden er 490.000 behandelingen gegeven. Probleemstelling: Is de prevalentie en hersteltijd van acuut …

Background: Myotonic dystrophy type 1 (MD1) is one of the most prevalent neuromuscular diseases, yet very little is known about how MD1 affects the lives of couples and how they themselves manage individually and together. To better match health care to their problems, concerns and needs, it is important …

To determine the number of employed people in a group of patients with neuromuscular diseases and in 3 separate subgroups (facioscapulo-humeral dystrophy, hereditary motor and sensory neuropathy, and myotonic dystrophy) to investigate any differences in employment status between the patient groups, and …

The phenotype of myotonic dystrophy type 2 (DM2) shows similarities as well as differences to that of myotonic dystrophy type 1 (DM1). Dysphagia, a predominant feature in DM1, has not yet been examined in DM2. In a recent nationwide questionnaire survey of gastrointestinal symptoms in DM2, 12 out of …

PURPOSE: A systematic evaluation of the literature to identify health and contextual factors associated with employment in patients with neuromuscular diseases (NMD) and to perform a best evidence synthesis, taking into account the design of studies, methodological quality and the statistical significance …

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