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The neglected puzzle of dementia in people with severe/profound intellectual disabilities

Wissing, Maureen B G; Ulgiati, Aurora M; Hobbelen, Johannes S M (Ageing And Allied Health Care); De Deyn, Peter P; Waninge, Aly (Healthy Ageing, Allied Health Care And Nursing); Dekker, Alain D

BACKGROUND: Dementia is increasingly prevalent in people with severe/profound intellectual disabilities. However, early detection and diagnosis of dementia is complex in this population. This study aimed to identify observable dementia symptoms in adults with severe/profound intellectual disabilities …

2022-01AlgemeenAndersoortig materiaal

Victimization history in female forensic psychiatric patients with intellectual disabilities: Results from a Dutch multicenter comparative study

Vivienne de Vogel (Lector); Robert Didden

"Background: Victimization is highly prevalent in individuals with mild intellectual disability (MID) or borderline intellectual functioning (BIF) and is an important risk factor for mental health problems and violent behavior. Not much is known, however, about victimization history in women with MID-BIF …

2022Mens & MaatschappijArtikel

The influence of the indoor environment on people displaying challenging behaviour: a scoping review

Sigrid Mueller-Schotte (Onderzoeker); Emelieke Huisman (Onderzoeker); Chantal Huisman (Onderzoeker); Helianthe Kort (Lector)

BACKGROUND: The care sector for persons with disabilities considers the physical environment relevant for the quality of life of people with intellectual disabilities. However, scientific evidence is limited. OBJECTIVE: To obtain evidence regarding comforting and encouraging environments and to develop …

2022GezondheidArtikel

On the Road Together

Sofie Sergeant (Onderzoeker); Henriëtte Sandvoort; Geert Van Hove; Petri Embregts; Kim van den Bogaard; Elsbeth Taminiau; Alice Schippers

Inclusive research practices can lead to progress towards an inclusive society. With this study, we aimed to gain insight into dilemmas and catalysing processes within the long-term collaboration of an inclusive research duo: one non-academic researcher who lives with the label of intellectual disabilities …

2022Mens & MaatschappijArtikel

On the Road Together: Issues Observed in the Process of a Research Duo Working Together in a Long-Term and Intense Collaboration in an Inclusive Research Project

Sofie Sergeant (Onderzoeker); Henriëtte Sandvoort (Onderzoeker); Geert Van Hove (Onderzoeker); Petri Embregts (Onderzoeker); Kim van den Bogaard (Onderzoeker); Elsbeth Taminiau (Onderzoeker); Alice Schippers (Onderzoeker)

2022Mens & MaatschappijArtikel

“Continuously struggling for balance”:

L. (Liesbeth) Geuze (Docent); Sam J.C. Schrevel (Docent)

Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon “parenting a child with PIMD.” Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research. Findings: The …

2022Gezondheid; …Artikel

Implementation of a program to support direct support professionals to promote a healthy lifestyle for people with moderate to profound intellectual disabilities

Overwijk, Annelies (Healthy Ageing, Allied Health Care And Nursing); Hilgenkamp, Thessa I.M.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); Krijnen, Wim (Statistical Techniques For Applied Research); Vlot-van Anrooij, D.E.K.; van der Putten, A. A. J.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Background: There is a lack of theory-based interventions for direct support professionals (DSPs) to support a healthy lifestyle for people with moderate to profound intellectual disabilities (ID) despite their major role in this. This study aims to evaluate the preparation, implementation, and preliminary …

2022AlgemeenArtikel

Development of a personalized substance use disorder treatment for people with mild intellectual disabilities or borderline intellectual functioning

Gosens, Lotte C.F.; Otten, Roy; de Jonge, Jannet M. (Lectoraat Geïntegreerde Complexe Zorg); Schellekens, Arnt F.A.; VanDerNagel, Joanneke E.L.; Didden, Robert; Poelen, Evelien A.P

Background: The prevalence of Substance Use Disorder (SUD) in people with Mild Intellectual Disability and Borderline Intellectual Functioning (MID-BIF) is high and evidence-based treatment programs are scarce. The present study describes the development of a personalised SUD treatment for people with …

2022AlgemeenArtikel

Needs of direct support professionals to support people with intellectual disabilities in leading a healthy lifestyle

Overwijk, Annelies (Healthy Ageing, Allied Health Care And Nursing); Hilgenkamp, Thessa I.M.; van der Schans, Cees (Healthy Ageing, Allied Health Care And Nursing); van der Putten, A. A. J.; Waninge, Aly (Participation And Health Of Persons With Intellectual And Visual Disabilities)

Background: For a healthy lifestyle, people with moderate, severe, and profound intellectual disabilities living in residential facilities and/or participating in day activity centers are dependent on their direct support professionals. However, it is unclear what knowledge and skills these direct support …

2021-12-01AlgemeenArtikel

Dementia in people with severe or profound intellectual (and multiple) disabilities

Dekker, Alain D; Wissing, Maureen B G; Ulgiati, Aurora M; Bijl, Bas; van Gool, Gaby; Groen, Marieke R; Grootendorst, Esther S; van der Wal, Ina A; Hobbelen, Johannes S M (Ageing And Allied Health Care); De Deyn, Peter P; Waninge, Aly (Healthy Ageing, Allied Health Care And Nursing)

BACKGROUND: Differentiating dementia from baseline level of functioning is difficult among people with severe/profound intellectual (and multiple) disabilities. Moreover, studies on observable dementia symptoms are scarce. This study examined (a) the relevance of dementia diagnosis, (b) observable symptoms …

2021-11AlgemeenArtikel

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