To explore consultation reports for patient and employment characteristics and recommendations on employment regarding patients with neuromuscular diseases (NMDs). Eighty percent of the included consultation reports contained information on employment. Less than half the patients with NMD were employed, …

DOEL. Consensus verkrijgen over het mobiliseren van patiënten op de intensive care (IC) qua definitie, hoofd- en specifieke doelstellingen, verrichtingen, frequentie, indicaties en contra-indicaties. METHODE. Een expertgroep van verpleegkundigen, fysiotherapeuten en artsen van IC-afdelingen van Nederlandse …

Background: Myotonic dystrophy type 1 (MD1) is one of the most prevalent neuromuscular diseases, yet very little is known about how MD1 affects the lives of couples and how they themselves manage individually and together. To better match health care to their problems, concerns and needs, it is important …

To determine the number of employed people in a group of patients with neuromuscular diseases and in 3 separate subgroups (facioscapulo-humeral dystrophy, hereditary motor and sensory neuropathy, and myotonic dystrophy) to investigate any differences in employment status between the patient groups, and …