Achtergrond: Het is belangrijk om volwassen broers en zussen te betrekken bij personen met intensieve ondersteuningsbehoeften. Deze studie onderzoekt de houding van zorgprofessionals in dit proces. Methode: De houding van zorgprofessionals (n=60) in Nederland werd onderzocht door middel van een online, …

Achtergrond Objectieve beoordeling van pijngerelateerd gedrag is cruciaal bij volwassenen met een ernstige verstandelijke en meervoudige beperking. Er is momenteel geen gestandaardiseerd instrument voor pijnobservatie beschikbaar dat specifiek op deze doelgroep is gericht. In een eerder onderzoek zijn …

What does collaboration in Dutch inclusive theatres look like, and what key themes can be identified? Data were collected through interviews and co-creative sessions with seven independent theatre makers and members of three participating theatre groups (n=48). Thematic analysis resulted in the proposal …

What does collaboration in Dutch inclusive theatres look like, and what key themes can be identified? Data were collected through interviews and co-creative sessions with seven independent theatre makers and members of three participating theatre groups (n=48). Thematic analysis resulted in the proposal …

ABSTRACT Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support …

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

The aim of this study was to gain insight into the visual functioning of children with profound intellectuual and multiple disabilities (PIMD). A mixed methods study was performed, determining cross-sectional quantitative ophthalmological/orthoptic data, and qualitative observational data with a standardized …

Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore …

Background People with intellectual disabilities (ID) have a lower life expectancy than their peers without ID. A contributing factor to the lower life expectancy and early mortality could be sarcopenia: low muscle mass and low muscle function. In the general population, sarcopenia strongly predicts …

Background For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during …