Achtergrond Objectieve beoordeling van pijngerelateerd gedrag is cruciaal bij volwassenen met een ernstige verstandelijke en meervoudige beperking. Er is momenteel geen gestandaardiseerd instrument voor pijnobservatie beschikbaar dat specifiek op deze doelgroep is gericht. In een eerder onderzoek zijn …

Research has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals …

What does collaboration in Dutch inclusive theatres look like, and what key themes can be identified? Data were collected through interviews and co-creative sessions with seven independent theatre makers and members of three participating theatre groups (n=48). Thematic analysis resulted in the proposal …

What does collaboration in Dutch inclusive theatres look like, and what key themes can be identified? Data were collected through interviews and co-creative sessions with seven independent theatre makers and members of three participating theatre groups (n=48). Thematic analysis resulted in the proposal …

ABSTRACT Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support …

Background For young people with rare conditions associated with intellectual disability, the transfer from paediatric to adult healthcare providers is often complicated. European Reference Network ERN-ITHACA (Intellectual disability, TeleHealth, Autism and Congenital Anomalies) on Rare Congenital Malformations …

Introduction Take it Personal!+ is a treatment program for individuals with Mild Intellectual Disability or Borderline Intellectual Functioning (MID-BIF) and Substance Use Disorder (SUD). It is supported by a mobile health application (mHealth), and researchers found it can reduce Substance Use (SU). …

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

In order to gain a better understanding of the debates surrounding language preferences, the shifts in intellectual disability terminology in Dutch newspapers were analysed. Using quantitative and qualitative content analysis, this study examined newspaper articles between 1950 and 2020. The results …

Background People with intellectual disabilities (ID) have a lower life expectancy than their peers without ID. A contributing factor to the lower life expectancy and early mortality could be sarcopenia: low muscle mass and low muscle function. In the general population, sarcopenia strongly predicts …