Broers en zussen zijn belangrijk in het leven van mensen met een verstandelijke beperking en pervasieve ondersteuningsbehoeften. De ervaringen van volwassenen met de dingen die ze doen met of voor hun broers en zussen met pervasieve ondersteuningsbehoeften blijven onderbelicht. Deze studie onderzocht …

In disability research, there is an increased focus on the well-being of families with a child with a disability, also known as family quality of life (FQOL). However, the well-being of families with a child with profound intellectual and multiple disabilities (PIMD) has not yet been explored, even though …

Background: The “Care for Participation+” (CFP+) intervention was developed in order to change the attitudes of direct support professionals (DSPs) regarding the participation of adults with visual and severe or profound ID (VSPID). Aims: The aim of this study was to evaluate the effects of CFP+ on the …

Introduction Observable dementia symptoms are hardly studied in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D). Insight in symptomatology is needed for timely signaling/diagnosis. This study aimed to identify practice-based observations of dementia symptoms in this population. …

Background: For a healthy lifestyle, people with moderate, severe, and profound intellectual disabilities living in residential facilities and/or participating in day activity centers are dependent on their direct support professionals. However, it is unclear what knowledge and skills these direct support …

Aim Life expectancy of people with severe or profound intellectual disability (SPID) increases, which contributes to the risk of developing dementia. However, early detection and diagnosing dementia is complex, because of their low-level baseline functioning. Therefore, the aim is to identify observable …

Aim Direct Support Professionals (DSPs) provide important lifestyle behaviour support for people with intellectual disabilities (ID). They can use behaviour change techniques (BCTs) to do this. We aimed to evaluate which BCTs are used for supporting healthy lifestyle behaviour of people with moderate …

If being physically fit is of the outmost importance, then what can be said about the fitness of persons with severe or profound intellectual, visual and motor disabilities? Exactly how could their level of physical fitness be measured? Formulated differently, if a person sees little to nothing and in …