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PIONEER big data platform for prostate cancer: lessons for advancing future real-world evidence research

A. Lawlor; K. Beyer; B. Russell; T. Hulsen; et al.

Prostate Cancer Diagnosis and Treatment Enhancement through the Power of Big Data in Europe (PIONEER) is a European network of excellence for big data in prostate cancer. PIONEER brings together 34 private and public stakeholders from 9 countries in one multidisciplinary research consortium with the …

2024-09-09GezondheidArtikel

Polish translation, cultural adaptation, and validity confirmation of the Scored Patient-Generated Subjective Global Assessment

Zabłocka-Słowińska, Katarzyna; Pieczyńska, Joanna; Prescha, Anna; Bladowski, Maciej; Gajecki, Damian; Kamińska, Dorota; Neubauer, Katarzyna; Ottery, Faith; Jager-Wittenaar, Harriët (Healthy Ageing, Allied Health Care And Nursing)

Purpose: The Scored Patient-Generated Subjective Global Assessment (PG-SGA©) is a validated nutritional screening, assessment, triage, and monitoring tool. The aim of this study was to perform translation, cultural adaptation, linguistic, and content validation of the translated and culturally adapted …

2024-09-04AlgemeenArtikel

Hereditary cancer

Femke Christenhusz (Student)

Hereditary Breast and Ovarian Cancer (HBOC) typically arises from mutations inherited in the germline. BRCA1 and BRCA2 mutaions are predominant contributors to HBOC, accounting for the majority of cases. These mutations are associated with 10% of ovarian cancer cases and 3-5% of breast cancer cases [4]. BRCA1 …

2023-12-12Gezondheid; …Bachelor

Early Detection of Brain Metastases in a Supervised Exercise Program for Patients with Advanced Breast Cancer

Pelaez, Mireia; Stuiver, Martijn M. (Lectoraat Functioneel Herstel Bij Kanker); Broekman, Marike; Schmitz, Kathryn H.; Zopf, Eva M.; Clauss, Dorothea; Wengström, Yvonne; Rosenberger, Friederike; Steindorf, Karen; Urruticoechea, Ander; May, Anne M.

Introduction Around 25% of metastatic breast cancer (mBC) patients develop brain metastases, which vastly affects their overall survival and quality of life. According to the current clinical guidelines, regular magnetic resonance imaging screening is not recommended unless patients have recognized central …

2023-10-01AlgemeenArtikel

Linguistic and content validation of the translated and culturally adapted patient-generated subjective global assessment (PG-SGA)

Ripamonti, Carla I; Arena, Francesco; Di Pede, P; Guglielmo, M; Toffolatti, L; Bossi, P; Gandelli, M; Laviano, Alessandro; Chiesi, F; Jager-Wittenaar, Harriët (Malnutrition And Healthy Ageing)

The Patient-Generated Subjective Global Assessment (PG-SGA) is an instrument to screen, assess and monitor malnutrition and risk factors, and to triage for interventions. After having translated and culturally adapted the original PG-SGA for the Italian setting, according to International Society for …

2023-06-01AlgemeenArtikel

Malnutrition risk and frailty in head and neck cancer patients

Dewansingh, Priya (Healthy Ageing, Allied Health Care And Nursing); Bras, Linda; Ter Beek, Lies; Krijnen, Wim P (Healthy Ageing, Allied Health Care And Nursing); Roodenburg, Jan L N; van der Schans, Cees P (Healthy Ageing, Allied Health Care And Nursing); Halmos, Gyorgy B; Jager-Wittenaar, Harriët (Healthy Ageing, Allied Health Care And Nursing)

PURPOSE: Both malnutrition and frailty are associated with adverse treatment outcomes. Malnutrition (risk) and frailty are each commonly present in patients with head and neck cancer (HNC). However, their coexistence and association is unknown. Main goal of this study is to determine the coexistence …

2022-12-09AlgemeenArtikel

Experiences of interaction between people with cancer and their healthcare professionals: A systematic review and meta-synthesis of qualitative studies

Collet, Romain; Major, Mel (Centre Of Expertise Urban Vitality); van Egmond, Maarten (Centre Of Expertise Urban Vitality); van der Leeden, Marike; Maccow, Rhea; Eskes, Anne (Lectoraat Patiënt- En Familieparticipatie In De Klinische Zorg); Stuiver, Martijn (Lectoraat Functioneel Herstel Bij Kanker)

Purpose This study investigates patients’ experiences of interaction with their healthcare professionals (HCPs) during cancer treatment and identifies elements that HCPs can utilize to improve cancer care provision. Methods PubMed, CINAHL, PsycINFO, SCOPUS, and Embase were systematically searched for …

2022-10AlgemeenAndersoortig materiaal

Tobberup, Randi; Jager-Wittenaar, Harriët (Malnutrition And Healthy Ageing); Sørensen, Jonas; Kopp, Luise H. P.; Svarstad, Pernille; Sætre, Pia; Ottery, Faith D.

Background and aim: The Patient-Generated Subjective Global Assessment (PG-SGA©) is a globally used malnutrition screening, assessment, triage and monitoring tool. The aim of this study was to perform a linguistic and content validation of the translated and culturally adapted version of the PG-SGA for …

2022-02AlgemeenArtikel

A Japanese translation, cultural adaptation, and linguistic and content validity confirmation of the Scored Patient-Generated Subjective Global Assessment

Miura, Tomofumi; Elgersma, Rikako; Okizaki, Ayumi; Kazawa Inoue, Mihoko; Amano, Koji; Mori, Masano; Chitose, Haruka; Matsumoto, Yoshihisa; Jager-Wittenaar, Harriët (Malnutrition And Healthy Ageing); Ottery, Faith

Purpose: The Scored Patient-Generated Subjective Global Assessment (PG-SGA©) is a globally recognized and used nutritional screening, assessment, monitoring, and triaging tool. The aim of this study was to translate and culturally adapt the original English PG-SGA for the Japanese speaking populations …

2021-12-01AlgemeenArtikel

Greek translation and cultural adaptation of the scored patient-generated subjective global assessment: A nutritional assessment tool suitable for cancer patients

Lidoriki, Irene; Jager-Wittenaar, Harriët (Malnutrition And Healthy Ageing); Papapanou, Michail; Routsi, Eleni; Frountzas, Maximos; Mylonas, Konstantinos; Ottery, Faith; Schizas, Dimitrios

Background and aims: Patients with cancer frequently present with disease-related malnutrition and functional decline. The scored Patient-Generated Subjective Global Assessment (PG-SGA©) is a malnutrition screening and assessment tool commonly used in patients with cancer. The aim of the current study …

2021-06AlgemeenArtikel

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