In recent years, care for people with severe mental illnesses (SMI) has shifted from institutional to recovery-based treatment in which informal caregivers often have an important role. However, their increased involvement has elevated issues such as role strain or burden of care, which indicates that …

BACKGROUND: Following a severe burn injury, individuals embark on a lifelong process of managing and integrating the physical, psychological, and social consequences, including functional limitations, fatigue, altered body image, and psychological trauma. To aid in this process, healthcare professionals …

BACKGROUND: In geriatric oncology, family members frequently accompany patients during medical consultations, providing emotional and practical support while participating in shared decision-making (SDM). Family involvement in SDM can facilitate the decision-making process but also pose challenges for …

Samenvatting Behandelbeslissingen voor oudere oncologie patiënten zijn vaak complex. Dit komt door de grote variatie in achtergrond, comorbiditeiten, functionele capaciteiten en de impact van kankerbehandelingen op zowel de levenskwaliteit als de levensverwachting. In deze context is samen beslissen, …

AI-driven lifestyle monitoring systems collect data from ambient, motion, contact, light, and physiological sensors placed in the home, enabling AI algorithms to identify daily routines and detect deviations to support older adults "aging in place." Despite its potential to support several challenges …

Abstract Background There is a shift from inpatient to home-based geriatric rehabilitation (HBGR), and potential benefits are demonstrated. Previously, a theoretical HBGR model, version 1.0, has been developed, outlining its essential components. However, clear guidance on the practical design and organisation …

Background and Objectives Collaboration between formal and informal caregivers is essential for providing good care to nursing home residents. Yet, ambiguity regarding mutual roles and responsibilities often impedes effective collaboration. To address this issue, we examined how formal caregivers, informal …

Background For young people with rare conditions associated with intellectual disability, the transfer from paediatric to adult healthcare providers is often complicated. European Reference Network ERN-ITHACA (Intellectual disability, TeleHealth, Autism and Congenital Anomalies) on Rare Congenital Malformations …

This dissertation explores variety in caregivers’ views on sharing care. To provide a better understanding of the wide range of informal care situations, brief stories of caregivers are sketched between the individual chapters of this dissertation. These caregivers participated in the qualitative sub-study …

As more and more older adults prefer to stay in their homes as they age, there’s a need for technology to support this. A relevant technology is Artificial Intelligence (AI)-driven lifestyle monitoring, utilizing data from sensors placed in the home. This technology is not intended to replace nurses …