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Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach

Rechten: Alle rechten voorbehouden

Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach

Rechten: Alle rechten voorbehouden

Samenvatting

Purpose: The aim of this study was at gaining insight into the participatory design approach of involving
people with dementia in the development of the DecideGuide, an interactive web tool facilitating shared
decision-making in their care networks.
Method: An explanatory case study design was used when developing the DecideGuide. A secondary analysis
focused on the data gathered from the participating people with dementia during the development
stages: semi-structured interviews (n¼23), four focus group interviews (n¼18), usability tests (n¼3), and
a field study (n¼4). Content analysis was applied to the data.
Results: Four themes showed to be important regarding the participation experiences of involving people
with dementia in research: valuable feedback on content and design of the DecideGuide, motivation to
participate, perspectives of people with dementia and others about distress related to involvement, and
time investment.
Conclusions: People with dementia can give essential feedback and, therefore, their contribution is useful
and valuable. Meaningful participation of people with dementia takes time that should be taken into
account. It is important for people with dementia to be able to reciprocate the efforts others make and to
feel of significance to others.

Toon meer
OrganisatieHogeschool Windesheim
LectoraatInnoveren in de ouderenzorg
ICT-innovaties in de zorg
Gepubliceerd inDisability and Rehabilitation Tayler & Francis, Vol. 39, Uitgave: 21, Pagina's: 1-11
Datum2017-03-12
TypeArtikel
ISSN0963-8288
TaalEngels

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