Although disabled advocates influence debates around public disability representations through their personal and professional insights, the processes by which they manage these representations have been largely overlooked. This study explores how Dutch disabled advocates present themselves (i.e., impression …

The term ‘inclusive’ is inherently complex, as it implies a division suggesting that certain voices, previously excluded, are now permitted or even expected to participate. Drawing on the philosophical work of Serres and Cavarero, in this chapter the concept of polyphony is introduced as an alternative …

This study aimed to gain insight into the sexual experiences of adults with intellectual disabilities (ID) and the support they receive from residential staff in expressing their sexuality. A semi-structured interview protocol, informed by existing literature was developed. Participants with ID, with …

Achtergrond: Het is belangrijk om volwassen broers en zussen te betrekken bij personen met intensieve ondersteuningsbehoeften. Deze studie onderzoekt de houding van zorgprofessionals in dit proces. Methode: De houding van zorgprofessionals (n=60) in Nederland werd onderzocht door middel van een online, …

Purpose Parents with physical disabilities experience social marginalization, reflecting pervasive ableism and stigma. It is critical to understand their experiences related to parenting to develop targeted and supportive programs. The primary objective was to examine the extent of existing knowledge …

Achtergrond Objectieve beoordeling van pijngerelateerd gedrag is cruciaal bij volwassenen met een ernstige verstandelijke en meervoudige beperking. Er is momenteel geen gestandaardiseerd instrument voor pijnobservatie beschikbaar dat specifiek op deze doelgroep is gericht. In een eerder onderzoek zijn …

Background Families with intellectual disabilities are overrepresented in child protection systems. However, little is known about how adverse experiences co-occur in this population. This study examined the prevalence and interrelations of original and extended adverse childhood experiences (ACEs) and …

Aim: Mothers of children with intellectual disabilities are particularly vulnerable to mental distress due to demanding and exhausting caregiving. However, in the Arab world, they are seldom screened for depression because of limited diagnostic resources. Addressing the urgent need for brief and reliable …

Children with intellectual disabilities experience unique developmental, social, and environmental challenges that intersect with adverse childhood experiences (ACEs) and positive childhood experiences (PCEs), shaping their psychosocial outcomes. While prior research has mainly examined single adversities …

Research has largely focussed on public perceptions of people with disabilities, particularly in the media. However, there is a lack of studies exploring how individuals with disabilities themselves experience public disability representation. This scoping review examines the lived experiences of individuals …