Actively involving people with intellectual disabilities (ID) in health research, also known as inclusive health research, is increasingly popular. Currently, insight into experiences of this type of research is scarce. To gain insight into this topic, a structured literature review was conducted focussing …

The British Medical Journal’s (BMJ’s) patient revolution strives for collaboration with patients in healthcare and health research. This paper studies collaboration with people with intellectual disabilities (ID) in health research, also known as inclusive health research. Currently, transparency and …

Purpose The aims of this study were to adapt the Paediatric Evaluation of Disability Inventory, Dutch version (PEDI-NL) for children with cerebral visual impairment (CVI) and cerebral palsy (CP) and determine test–retest and inter-respondent reliability. Method The Delphi method was used to gain consensus …

Gastcolleges Engels en Nederlands voor studenten fysiotherapie, specialisaties Volwassenen, Ouderen en Kinderen. In het gastcollege wordt de doelgroep mensen met een verstandelijke beperking toegelicht en verder toegespitst op de groep mensen met een visuele beperking. Belangrijkste thema: gezondheid, …

The aim of this study was to determine the similarities and differences in social network characteristics, satisfaction and wishes with respect to the social network between people with mild or borderline intellectual disabilities (ID), people with autism spectrum disorders (ASD) and a reference group. …

Physical health issues in persons with Severe or Profound Intellectual and Multiple Disabilities (SPIMD) Aims: People with severe or profound intellectual and multiple disabilities experience a wide range of complex health problems. However, the prevalence of different types of health problems and their …

Many children with profound intellectual and multiple disabilities (PIMD) now reach adulthood. The aim of this study was to elicit parents’ experiences with the transfer from pediatric to adult medical care. A convenience sample of 131 Dutch parents of young people with PIMD (16–26 years) completed a …

‘Wat voel ik?’ is a study about the contribution of psychomotor therapy (PMT) in recognizing emotions by youth with mild intellectual disabilities (MID) in a age of 12 until 20 years. The study should result in a number of clues about how the PMT, as a form of treatment, can be used to learn youth with …

Background Anxiety and challenging behaviour (CB) often occur simultaneously in people with intellectual disabilities (ID). Understanding the associations between anxiety and CB may contribute to more accurate diagnoses and management of both anxiety and CB in this population. Aims To examine the relationship …

Because physical fitness and health are related to physical activity, it is important to gain an insight into the physical activity levels of persons with profound intellectual and multiple disabilities (PIMD). The purpose of this study was to examine heart rate patterns to measure the activity levels …