ABSTRACT Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support …

Background For young people with rare conditions associated with intellectual disability, the transfer from paediatric to adult healthcare providers is often complicated. European Reference Network ERN-ITHACA (Intellectual disability, TeleHealth, Autism and Congenital Anomalies) on Rare Congenital Malformations …

This PhD research explores how speech and language therapists (SLTs) can enhance the communicative participation of children with developmental language disorder (DLD) through shared decision-making with parents and a strong focus on the child's personal and environmental context. The work is grounded …

The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized …

PURPOSE: To gain a rich understanding of the experiences and opinions of patients, healthcare professionals, and policymakers regarding the design of OGR with structure, process, environment, and outcome components. METHODS: Qualitative research based on the constructive grounded theory approach is performed. …

Purpose: This study aims to overcome the challenges experienced in the regional development and implementation of home-based stroke rehabilitation (HBSR) and to understand the change process needed. Materials and methods: Using participatory action research (PAR), participants and researchers collaboratively …

The fundamental premise of this chapter is that technology-mediated remote work in and of itself is not necessarily a panacea for disability inclusion. This necessitates a focus on what technologies enables individuals to do (and not do). This chapter draws on a mixed-methods (a survey and qualitative …

Background Children with speech sound disorders (SSD) are at higher risk of communication breakdown, but the impact of having an SSD may vary from child to child. Determining the severity of SSD helps speech-language therapists (SLTs) to recognise the extent of the problem and to identify and prioritise …

Providing an overview of the knowledge and methods required by professionals working in a mandated setting with adults who have committed offences, Forensic Social Work presents evidence-based knowledge in an accessible way that can be directly translated to application in daily practice. Covering a …

Introduction Take it Personal!+ is a treatment program for individuals with Mild Intellectual Disability or Borderline Intellectual Functioning (MID-BIF) and Substance Use Disorder (SUD). It is supported by a mobile health application (mHealth), and researchers found it can reduce Substance Use (SU). …