The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized …

Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …

This thesis aims to develop and validate a comprehensive and adaptable activity monitoring system that quantifies physical behaviours in children with and without developmental disabilities, including those utilizing assistive devices. This system seeks to overcome the current limitations in the accuracy …

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

This study explores the experiences of women with disabilities in Makurdi, Nigeria, focusing on their family relationships, the forms of discrimination they face, their access to support services, and the influence of cultural norms on their experiences of violence. The research seeks to answer four …

Introduction: Bruxism is a repetitive masticatory muscle activity that may cause substantial morbidity and reduce the quality of life in children with profound intellectual and multiple disabilities. Assessment methods most commonly used were caregiver reporting and dental examination, This systematic …

In the Netherlands, many parents of children with profound intellectual and multiple disabilities care for their children at home. Little is known about how parents and involved healthcare professionals share and align medical care for these children. This study aims to contribute to a better understanding …

The hip fracture causes significant disabilities in many elderly people. Many studies around the world have identified various risk factors for the hip fracture. The aim of this study was to systematically investigate the risk factors of hip fractures. This study is a systematic review of risk factors …

Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems …

Doel De mate waarin mensen met verstandelijke en visuele beperkingen technologie kunnen gebruiken is afhankelijk van de mate van ondersteuning die ze krijgen. Er is echter een gebrek aan kennis over de relatie tussen de constructen inspanningsverwachting, attitudes en gedragsintenties van ondersteuningspersonen …