In het veranderingsproces naar samen beslissen en passende zorg is het perspectief vanuit de patiënt, en de naasten, fundamenteel. Stichting FCIC (Family and patient Centered Intensive Care), waaronder patiëntenorganisatie IC-Connect, heeft in nauwe samenwerking met het Erasmus MC, HAN University of …

Family participation in essential care may be beneficial for both ICU patients and relatives [2]. It may also improve the patient’s comfort, safety and quality of care [5]. Furthermore, relatives may feel less powerless during the patient’s ICU stay when participating in care [2]. Most ICU healthcare …

BACKGROUND: Healthcare professionals in the hospital setting frequently assume primary caregiving responsibilities, which often leads family members to perceive this as standard practice during hospitalization. This dynamic may create a gap between actual and desired levels of family involvement. The …

Dit hoofdstuk behandelt tal van onderwerpen uit de dagelijkse praktijk op de intensive care. Allereerst belichten we het assessment en de eerste opvang van de vitaal bedreigde patiënt volgens de ABCDE-systematiek. Vervolgens de aandachtspunten en wettelijke eisen die gesteld worden aan rapportage en …

For the elderly a major decline in health often entails a dramatic shift in living conditions. One of the harshest aspects is the loss of social context. Based on experiences in her own family, the designer sets out to redefine the puzzle of health, care and social context. By conceiving the needs in …

De IC-HerstelWijzer en IC-NaastenCoach zijn nieuwe, digitale platforms die Intensive Care-patiënten en hun familie tijdens en na opname ondersteunen. Stichting FCIC (Family and Patient Centered Intensive Care) en patiëntenorganisatie IC-Connect zijn de platforms gestart in samenwerking met Erasmus MC. …

OBJECTIVE: We designed a Patient and Family Participation Education Program (PFEP) with the aim of fostering a positive attitude and enhancing the competencies of hospital nurses required for effective patient and family participation in care. METHODS: In a Dutch university hospital, we conducted a before-after …

Objective We designed a Patient and Family Participation Education Program (PFEP) with the aim of fostering a positive attitude and enhancing the competencies of hospital nurses required for effective patient and family participation in care. Methods In a Dutch university hospital, we conducted a before-after …

Background: There is a lack of evidence regarding the relationship between family involvement and outcomes in gastrointestinal oncology patients after surgery. To evaluate the effect of a family involvement program for patients undergoing oncologic gastrointestinal surgery on unplanned readmissions within …

In the Netherlands, many parents of children with profound intellectual and multiple disabilities care for their children at home. Little is known about how parents and involved healthcare professionals share and align medical care for these children. This study aims to contribute to a better understanding …