This study aimed to gain insight into the sexual experiences of adults with intellectual disabilities (ID) and the support they receive from residential staff in expressing their sexuality. A semi-structured interview protocol, informed by existing literature was developed. Participants with ID, with …

Achtergrond Objectieve beoordeling van pijngerelateerd gedrag is cruciaal bij volwassenen met een ernstige verstandelijke en meervoudige beperking. Er is momenteel geen gestandaardiseerd instrument voor pijnobservatie beschikbaar dat specifiek op deze doelgroep is gericht. In een eerder onderzoek zijn …

ABSTRACT Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support …

Background For young people with rare conditions associated with intellectual disability, the transfer from paediatric to adult healthcare providers is often complicated. European Reference Network ERN-ITHACA (Intellectual disability, TeleHealth, Autism and Congenital Anomalies) on Rare Congenital Malformations …

Purpose: This study aims to overcome the challenges experienced in the regional development and implementation of home-based stroke rehabilitation (HBSR) and to understand the change process needed. Materials and methods: Using participatory action research (PAR), participants and researchers collaboratively …

The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized …

PURPOSE: To gain a rich understanding of the experiences and opinions of patients, healthcare professionals, and policymakers regarding the design of OGR with structure, process, environment, and outcome components. METHODS: Qualitative research based on the constructive grounded theory approach is performed. …

Background:   Intellectual disability (ID) is a developmental disorder that causes considerably below-average intellectual performance and adaptive behaviour. In the context of the present study, families raising a child with ID are reported to experience multiple challenges that appear not to be well …

Er is een gebrek aan kennis over gezinnen die adolescenten opvoeden met ernstig verstandelijke en meervoudige beperkingen (PIMD) tijdens de overgang naar volwassenheid. Deze studie onderzoekt de ervaringen en ondersteuningsbehoeften van deze gezinnen tijdens deze transitie. Er werd gebruik gemaakt van …

Doel De mate waarin mensen met verstandelijke en visuele beperkingen technologie kunnen gebruiken is afhankelijk van de mate van ondersteuning die ze krijgen. Er is echter een gebrek aan kennis over de relatie tussen de constructen inspanningsverwachting, attitudes en gedragsintenties van ondersteuningspersonen …