Purpose Parents with physical disabilities experience social marginalization, reflecting pervasive ableism and stigma. It is critical to understand their experiences related to parenting to develop targeted and supportive programs. The primary objective was to examine the extent of existing knowledge …

Background Families with intellectual disabilities are overrepresented in child protection systems. However, little is known about how adverse experiences co-occur in this population. This study examined the prevalence and interrelations of original and extended adverse childhood experiences (ACEs) and …

Speech language therapists (SLTs) are often challenged in their work with patients with different communication vulnerabilities. Even though SLTs are trained experts in communication, experiences from the field indicate that they often feel uncertain in interactions with multilingual patients and their …

Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …

The importance of hearing parents of deaf and hard-of-hearing (DHH) children learning sign language is well documented. However, parents face many challenges in this learning process. This study investigates the experiences of Dutch hearing parents learning Dutch Sign Language (NGT) or Sign-supported …

In the Netherlands, many parents of children with profound intellectual and multiple disabilities care for their children at home. Little is known about how parents and involved healthcare professionals share and align medical care for these children. This study aims to contribute to a better understanding …

Background and purpose In the Netherlands, the 2022 Quality Standard 'Youth in transition from paediatric to adult care' underscores the importance of structured transitional care for young adults with chronic health conditions. Despite this emphasis, detailed knowledge about transition programs and …

This article describes a study of adult children’s forgiveness processes following severe childhood parental injury. Consistent with the phenomenological tradition of qualitative research in-depth interviews were conducted with forty-eight participants in the Netherlands, Romania, and Israel to capture …

Objective: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child’s disability. There is a significant lack of research on parents’ lived experiences of chronic sorrow, which limits our ability to understand …

Chronic sorrow involves parents’ enduring grief due to their child’s disability. This stems not only from the recurring painful reality parents face, which differs from the life they had hoped for their children, families, and themselves but from also being confronted with societal and personal norms …