Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …

Pregnancy and early parenthood mark a transformative period where women become caregivers and assume a new role with new responsibilities. While often portrayed positively, the transition to motherhood can be overwhelming. This is especially true for women living in adverse circumstances, presenting …

Background: Medical consultations with older patients often include triadic conversations and decision-making processes involving physicians, patients, and family members. The presence of family members may change the communication dynamics and therefore increase the complexity of the consultation and …

De IC-HerstelWijzer en IC-NaastenCoach zijn nieuwe, digitale platforms die Intensive Care-patiënten en hun familie tijdens en na opname ondersteunen. Stichting FCIC (Family and Patient Centered Intensive Care) en patiëntenorganisatie IC-Connect zijn de platforms gestart in samenwerking met Erasmus MC. …

OBJECTIVE: We designed a Patient and Family Participation Education Program (PFEP) with the aim of fostering a positive attitude and enhancing the competencies of hospital nurses required for effective patient and family participation in care. METHODS: In a Dutch university hospital, we conducted a before-after …

Objective Hospital-to-home (H2H) transitions challenge families of children with medical complexity (CMC) and healthcare professionals (HCP). This study aimed to gain deeper insights into the H2H transition process and to work towards eHealth interventions for its improvement, by applying an iterative …

Purpose  The aim of this study was to gain insight into the perspectives of older adults on the quality of geriatric rehabilitation (GR) during the trajectory of GR from admission until six weeks after discharge. Methods We conducted a longitudinal qualitative study. Participants were interviewed three …

Objective We designed a Patient and Family Participation Education Program (PFEP) with the aim of fostering a positive attitude and enhancing the competencies of hospital nurses required for effective patient and family participation in care. Methods In a Dutch university hospital, we conducted a before-after …

This thesis explores the design and development of a customizable avatar system within Unity, aimed at facilitating conversations between healthcare professionals and their clients regarding family relations, mental health, and self-image in mental health facilities. Employing a multi-phase research …

Background: To prevent deterioration after admission to the intensive care unit (ICU), and to improve rehabilitation, the ICU team should use digital technologies to provide comprehensive and practical information alongside personalised support for survivors and their family members. However, a knowledge …